Looking Forward (Or Deja Vu?)

You never know where the road is going to take you. Be careful with yourself. Don’t abuse yourself or others, or take your body (or life) for granted.

One day you may be in a situation where you don’t know what’s next for it – and whether you believe me or not, or like it or not, or think it’s a dramatic statement or not, I don’t care – it’s a terrifying and uncomfortable place to be, especially when you have small children.

It’s funny how you can be considering the future, looking forward and not behind, but feel as though you are watching your past happen all over again – and you never expected it and thought you’d done everything to prevent it from ever being this way again. Well. When it comes to the body, and to life, really, sometimes things just happen.

Sometimes things happen and they’re scary and they’re hard and you can’t talk about it because…well, no one will understand and you don’t want anyone to act a certain way, or maybe you just don’t want to be vulnerable because you’re already possibly more vulnerable than many people assume.

You don’t mean to be vague but you are just doing the best you can to process your own existence – and you have no clue. None. Not even a tiny one. You’re just waiting. You’re waiting because it’s deja vu and you know what happened then; but, it’s also a different experience and you know it’s “now,” not “then,” but you’re gun-shy from the last experience…so time is the only source of answers, if time or answers even exist.

Life is like driving a car. You can drive all you want, but you never really have power or control over anything. Forces far greater than you do – and sometimes they’re not kind. And, if you think you do have everything under control? It’s an illusion.

Don’t delude yourself. You’re going to be in a world of hurt at some point, if you do. Don’t forget that when you dance, eventually you have to pay the band.

Don’t assume you know people. Don’t assume you know what’s going on in their life. Don’t judge based on what you THINK you know, because in reality? You don’t know squat except about yourself. Focus on that, unless you do know facts and you can be of some emotional or physical help in someone’s life.

That’s what the last few years have taught me, in being treated like crap, and allowing myself to be used by people and abused by the medical system. Did it make me stronger? Wiser? Yes. Did it hurt? Badly? Also, absolutely yes.

Don’t be a selfish jerk. Do good. Be gentle. Be compassionate. Be kind. Do all those things for yourself and for others. Make it a great day. I love you all. ❤️

~C.

You’ll never know…

…until you have actually and fully been there.

Until you have actually walked this road in a way that leaves the soles of your shoes worn out and developing holes, and your feet blistered and bleeding twice as much as your heart pumps through you and until you have not only seen but had no choice but to actively participate in the sights and scenes DAILY, because there literally was no one else, for so long that you feel like you’re in a Stephen King novel, no – you will never know what it’s really like.

How it can wear you so thin that it nearly destroys you, the way water seems to work like acid and melts cheap toilet paper.

How it can tear you down to a level that you, as compassionate and kind a person you are or try to be, think, “the next time someone tells me I should smile more, or I should look on the bright side (which is what? That eventually she’ll die and I won’t have to do this anymore?) I’m going to punch them in the face.”

How you start avoiding people because you’re sick of their hypocritical judgments and comparisons, OR the way they pretend to understand when you know good and well they have no clue so you just stop talking about it and pretend it’s easy and everything is fine…

100%. Until you’ve done it, you’ll never understand completely what it’s like. I shared a lot of our journey. Even then it was only a fraction and what I did share was picked apart by completely irrelevant, inexperienced people. But I will keep sharing this until we have real reform and raise the standard of care for caregivers and their loved ones with dementia. (Thank you, Martina.)

When my mom died, it broke me. It wasn’t the grief that broke me, it was the RELIEF that broke me. Because I had no idea what to do with it. And I felt guilty for feeling it in the first place.

Finally being able to breathe and stop and rest after SO LONG of being a full time care giver going between two homes and three people (wait, four – but I never really thought of myself, lol) and dealing with doctors and being sick myself…?

THAT almost killed me.

I’m not exaggerating or trying to be dramatic or draw attention, which is what people always love to say when you share thoughts like this (which reallllly doesn’t help so just shut up because that kind of thing can drive someone over an edge you will never understand when they’re grieving loss after caregiving).

I just finished writing a whole chapter about this. Maybe I’ll share it via my blog… For now, here’s the thing I want you to know and remember:

If you’re in a situation like this or are grieving after a situation like this, know that you’re not alone. Know that there ARE those who see you and feel you because they’re there, too, or they’ve been there before.

I pray not one of you ever has to go through it (or go through it again).

If you are forced to go through it, I pray you get the resources you need (financially and otherwise) sooner than a month before your loved one dies because the only thing that finally saves the day is hospice.

I pray if you do face this situation, you have less people than more coming at you with what you need to do and how you need to act but NEVER actually doing anything to help you do what they think you should do and regularly acting the same way you’re acting despite not being in your shoes and instead having everything they could ever want or need.

And I pray that if you ever find yourself in those shoes, you give yourself grace and you forgive yourself daily, before the day begins, for the fact that you’re never going to be perfect. You’re not going to get it right and keep your cool and manage your emotions well EVERY DAY. You’re just not. Period. So accept it and be gentle with yourself and just keep doing the best that you can. You’ve got this. You really do. You don’t think you do or feel that you do, BUT YOU DO. 🙏💜🙏

And if you’ve never been there at this level and never have to be? I pray you don’t take that privilege for granted. Because you ARE privileged.

💜💙💜

I Chose the 4D/5D

It is fundamentally and intellectually RIDICULOUS to see the truth in front of your face and continue to convince yourself to live a lie.

It’s one thing to not have proof and to question and seek and try to find clarity. It’s another thing completely to KNOW and to still defend something that has proven itself over and over again to be false…and so many things are.

If you can’t get out of the thoughts of the 3D and into the flow of acknowledging the feeling and truth in the 4/5D long enough to realize that everything is not as it appears in a physical sense then you’re never going to find your actual truth and live an authentically happy and peaceful life.

“There has to be balance. If you can’t find that, it’s because you’re not trying. And if you’re not trying, you have only yourself to blame” (that’s me speaking to me).

WE ARE NOT SEPARATE FROM EACH OTHER, no matter how badly we want to believe we are, in the 3D experience of life. If you haven’t allowed yourself to experience any thought pattern or existence other than that, you’re really missing out – you’re not authentic at all. It’s not all about you. It’s about the collective.

Lest we forget we have extremely short physical lifespans and we live on one of many “big rocks in the sky.” There is a whole universe – physically and spiritually – to explore. Yes, there is order in the natural world but that order comes from complete chaos. How is that not abundantly clear and obvious?

I don’t understand a “black and white” existence. I will never be convinced that’s all there is because I have experienced so much more. I have seen – and lived – in the technicolor realms of the “more” that so many people roll their eyes at. Once you go there, you can never go back to the mundane. And you’ll never want to. True story. The mundane will never again be enough.

“You perceive the world through 6 senses and your intuition starts to grow and expand. You seek a deeper meaning to life and you can start to see the synchronicity/magic of the Universe.” That’s where I prefer to be – I don’t live from my mind. I live from my soul. It’s not always easy but it’s always more fulfilling. Always.

Understanding the 3 States of Consciousness: 3D, 4D, and 5D

I learned…

You have the power to overcome conditioning –
especially conditioning you’ve done to yourself…
Patterns.
Obstacles.
Regrets.
Even fears.
It takes bravery, but it rests within you.
Be compassionate toward yourself,
Believe and see – you have the ability to heal the wounds that bring your anger,
that slice you open,
that feel like ghosts who just won’t follow the light and leave you be…
Forgiveness of self,
understanding is yours…
Now take the reigns and seek the changes,
do not doubt,
do not fear.
Know that you can change these patterns –
thoughts,
wants,
expectations of self…
You can do so much,
you can pray so much,
you can love so much –
others and yourself.
But
life will always happen
on life’s terms.
There is no other way.
Understand that no matter what you have chosen
or what you choose,
what you know,
or think you know,
what you wish for,
or what you loathe,
life will rise and fall,
come and go.
There is true peace to be found,
and felt…
but only within yourself,
and only when you let go and allow it…
only when you give yourself the opportunity
and the gift you need…
Only you know what that is.
It’s the only way.
~C.

Thoughts from 1993

Ahhhhh memories. Snowmageddon in Alabama, this week in 1993.

I was 14, and I remember my dad yelling at me because I would not come inside once it started snowing. I had never in my life seen snow like this snow – I was completely fascinated. It was different snow. I swear it was physically different than any snow I’d ever experienced up until that moment in my life.

I remember being out there in the backyard, in the dark, at something like 11:30PM, bundled up and just sitting there letting the snow fall on my face and consciously feeling the snowflakes melt on my skin in a way that connected with my soul. I remember thinking about magic and all these ideas I had that were “sinful” according to the cult I was raised in but that were so beautiful to me and how it WAS magical, even if the biblical God created it.

Like, how could those two things not go together, in my mind? They believed in a “holy ghost” that they willingly allowed to possess them and speak in unknown languages through them that wasn’t supposed to be real unless someone in the immediate vicinity could interpret the message.

First of all, why couldn’t God just give it to them straight, and secondly WHY? That was me from about age 2 until the day I die. WHY? What? Constant curiosity. Constant trying of new things. Constant exploration of self and soul and consciousness and the physical earth. None of it ever made sense to me from a religious aspect. Why couldn’t it all just be signs and magic and the fates and wonder and beauty? I still want to know that – where do people go in their life experiences that makes them forget the magic? The spark? The music…?

And yet, here I am. Deep in the depression and what to others seem to be mere suicidal thoughts when those thoughts are really so much more than that. But, we will visit that notion a bit later on…

I remember the “good” things but I remember the “miserable” things, too. And in reality, they weren’t miserable things to me. No power? That’s fine. We had kerosene heaters and propane gas in a tank outside that I used to pretend was a horse and I couldn’t tell you how many cows I roped that were actually logs I’d stood on end or how many criminals I’d captured by shooting them in the leg with hip shots that were actually soda cans I was shooting with a BB gun. We were warm. It was fine.

I remember not having power because I remember the coolers on the back deck that were buried in the snow with all the cold stuff in them, and I remember my dad being a smart ass and using the BBQ grill with an iron skillet to cook eggs just because it was “a fun new way to grill chicken” even though we had a gas stove. Ha! But I remember being completely unbothered by the lack of power. Why? Because of the time I spent with my dad. I remember my dad building a snowman with me that he named Larry and making a tiny one with me that I named Mo.

Curly never got made (built) because that was my mom’s choice but she never came outside and my dad said that if Curly was being built she had to make him with us or her snowman wouldn’t be magical (without her energy in him), so there was no point building a snowman with no magic in him. My dad was an evangelical deacon and that was the first time I ever heard him mention magic from the perspective a kid would and not from the perspective of evil. My mom said to my dad, “oh, fiddlesticks. Magic is not reality.” I will never forget that. It crushed my soul in some way. What happened to the “magic” that had brought me into her life? Did that not exist anymore, or had it ever existed for her at all? That was heartbreaking to me.

My mom did play the piano, though. And instead of being filled with the sounds of Andy Griffith and Lucille Ball and Perry Mason, I was surrounded by the comforting sounds of old (what I thought at the time were just) Southern hymns like, “It Is Well,” How Great Thou Art,” and “I Surrender All,” and classical “hits” from Pachelbel’s “Canon” and beautiful Beethoven’s “Moonlight Sonata.” I adored Beethoven. I adored romantic era classical music. I adored music washing over me. I adored my dad’s voice. I adored singing with him. There was that…and laughter. Not so much my mom because she was busy with needlework and knitting and incessant organizing, but my dad and I were having a ball.

I remember walking in the woods behind where my grandmother’s giant garden always lived in a path he cut out for me in this deep ass snow – we walked to this specific place that he would often visit just to sit and reflect on life in the quiet (and magic) of nature, crossing the frozen and snow filled wet weather stream and climbing over mounds of snow on fallen limbs and logs on the way and me being glad the fae that lived in the holes in the bank had “moved away,” as my grandmother had told me, so that they weren’t blocked inside their little fairy houses and if they were ok (the fae in the holes turned out to be snakes, I later learned when I tried to catch a fairy at the age of 7 and ended up pulling out one of those little grey ring neck snakes that I tried to keep as a pet but that went suspiciously missing overnight, only later to learn that my father had let it go – I was so distraught and depressed by this reality that my grandmother literally told me they’d just moved away or gone on vacation and the snake was protecting their homes…ha!).

I digress – as usual… Anyway, we got to this specific place and my dad and I sat there on a log he had cleared of snow. He proceeded to have this talk with me about my religious beliefs and the difference between that and spirituality. He didn’t yell at me for being a sinner or for not believing in or for questioning the cult (obviously, he never thought of it that way but I always did – even before I understood cultism – it NEVER made sense to me how this was love and freedom). He simply quoted to me for the first time in context two scriptures that have always stuck with me (hey, the literature of the Bible is really rather brilliantly written – it has everything good and terrifying in it).

He explained his thoughts on death and salvation to me and I remember very specifically and vividly him saying to me that it didn’t matter WHAT I believed, really, about religion. What mattered was that there was, in his perception, absolutely life after death because how could there not be? Our souls had to exist before we were born in order for them to enter our bodies, he said, and so we must logically still exist once our bodies died. That made sense to me.

That was the day – maybe two days after the snow had fallen – that he told me that the only real truth was the truth in my heart, and that was always the truth I should follow – and seek out, and sometimes chase in times of great despair. “Wherefore, my beloved, as ye have always obeyed, not as in my presence only, but now much more in my absence, work out your own salvation with fear and trembling.” It’s Philippians. Chapter two I think (I’m not looking it up, I’m lazy right now).

And then he told me – at 14 and a fourth years old – something that I remember very clearly but am struggling with since he (since they all) died. “We all die, but we never leave the ones we love. I will always be with you. Our Gods may not have the same name but they are one and the same being – love (which I questioned deeply and still do because the God of the Bible is only rarely ever what I would call “loving” – he has to invent a son before he becomes that, which to me is kind of this whole personification of the experience of growing and learning and becoming better and letting go of who you thought you had to be in order for life and your world to work).

Then he quoted another scripture to me that has been my north node for the past five and half years since his death. “And Ruth said: “Entreat me not to leave thee, or to return from following after thee; for whither thou goest, I will go, and where thou lodgest, I will lodge. Thy people shall be my people, and thy God my God.”

I want to believe that they are still here. I used to be so faithful to the idea of spirit and energy that it didn’t matter whether I could see the energy with my eyes in a physical manifestation of itself – it was just there, even if it wasn’t, in some form. Now? I don’t know what I believe anymore. Do I still believe that? Absolutely. Scientifically. I mean, hello, gasses that can’t be seen or smelled but can still kill you. Energetic, invisible death.

But in that sense of spirituality and magic? How does that energy put pennies in my bathtub or place heart shaped rocks and leaves directly in my oath where there should not be rocks or random fallen leaves (like in paved parking lots or on concrete pathways in well manicured city parks? I don’t know. Where do the random smells of bacon cooking or the paper mill or even jasmine and smoke when no one is smoking (Dorie) come from? Where does the audible sound of the piano or a typewriter come from when there are no working typewriters in my house (a couple of broken ones, though) and no one is there but me and I’m not playing the piano?

Are these experiences a mere wishful figment of my imagination? Or are they my people, who are still in some way my people, that have not left me? DO THEY still dwell where I dwell, just in a different dimension?

I want to believe that. I choose to believe that. But sometimes that belief hurts…because when I “feel them there,” it’s not enough. I want to hug them and hold them and say the things I didn’t say to them and apologize for things I did say that I wish I hadn’t said. I want to feel their warmth and hear their breath and their voices. I long to just sit with them for a moment and hold their hands in mine. To sing with them. To laugh with them. To feel the safety and the gratitude of their physical presence. But none of our bodies are safe. They will die. They are literally dying now – and have been from the moment we were born. But what about our souls?

I want to go there. I want to know. So when I say I’m ready for that trip? It’s curiosity and it’s existentialism and it’s wonder and in all of my thoughts about it, that place is so much better than this one. It’s not that I don’t deeply love and want to be around the people I love and call friends and family now. It’s missing the soul connections with those people because the physical gets in the way of that in this society and in this world today. It’s not as magical as it used to be.

Things are no longer filled with so much color and shine – although for a moment they were again, for a recent moment…a moment I sometimes wish I’d never had now because the taste of that and then seeing the mirage that it was…that hurts almost worse than losing my people to death, because maybe, just maybe, they still exist where that never did.

These are the thoughts in my mind tonight – or this morning – at 3:33AM. I know they may sound a little delirious and maybe they are. Are my thoughts any more or less real than my soul? Or are they one and the same? This is why I studied and continue to study human behavior and human cognition and spirituality and philosophy. Because I NEED to know. And one day, I will. But not today – because today things need to be cleaned and washed and taught to the boy. So not today…and I should try again to sleep.

Devil’s Backbone (Again)

Some shots from Devil’s Backbone…

Also, had this on my mind tonight:

You don’t know what someone is dealing with…what they’re going through. Sometimes a person can be confident and also anxious, look healthy but be sick, look happy and be miserable, look good but feel ugly, act hopeful but feel hopeless, smile and be broken, or never smile at all and be happy… You don’t know. So unless you ask, don’t judge. Don’t assume. Sometimes a person you see every single day or think you know very well can be fighting battles you know nothing about.

Be kind.

The End of the Road (Last Blog Before My Mother Died)

TW: the dying experience. Do not read further if you can’t deal with that kind of reality, or if you’ve had a recent loss that this will gnaw at…







Seriously, I’m going to share this reality so don’t keep reading if you’re not comfortable with this type of thing. This is my coping mechanism. To write. To share with those who can handle and understand it. To feel like my support system is with me…







This morning around 3:30am my mom’s oxygen started dropping. First it was 92. Then it was 90. Then it was 88. Then it was 85. She kept yanking the oxygen away. I stuck it in her mouth until the higher dose of morphine kicked in and she relaxed. Then, I put it back in her nose.

I called the after hours line. I was told I was doing everything I needed to be. I mean, it’s kind of common sense at this point, after the others, for me – but that doesn’t mean adrenaline and norepinephrine don’t fly and dopamine and seratonin don’t plummet…and you need that reassurance because you second guess. You feel responsible for more than comfort. You feel responsible for the pain, too. You can’t help it.

I cranked the oxygen up to 3. I started giving half doses of morphine every 30 minutes. Her chest would rise when she gasped, then cave in. Then the fluid rattle started again with her shallow breaths.

She would draw up in a fetal position, moaning and gasping, still with oxygen in her nose but oxygen levels still rising and falling at will because of the mouth breathing and the breath holding and the inability to get enough oxygen with the fluid.

She has not eaten in 12 days. She has not drank in 3 days. She is in the final phase of the dying process. I knew that. I know that. But nothing prepares you for that. I am grateful that she is home, and that I moved here. I am grateful that it is not the nursing home I fought for, or the hospital, where I likely couldn’t be with her…where she would be alone.

I have laid with her – some would say a gift, and I agree…though in the moment it doesn’t feel like one. I suppose it will one day, just like with both my grandmothers, my Daddy, and Dorie, and pets… I held her hand. I cried silent tears, watching her face grimace and her eyes open with the moans only to reveal cloudy, lifeless eyes. I waited patiently for the nurse.

The nurse came at 8:30. Upon assessment, the things are happening. The limbs are cooling. The bp is dropping. The heart rate is rising. The temperature is rising as her core fights to hang on. All the things.

It could be today, it could be three days. It could be a week – probably not longer than that, because of the lack of food and fluid. I have chosen to make her comfort the priority, with oxygen, and liquid morphine and Ativan. Myself and the doctor have chosen to forego the feeding tube, and IV fluids. There is no point in drawing it out, and a DNR is a DNR – all those things are at this point are life support. She doesn’t want that. It’s documented. I will not allow myself to feel guilty for those choices. She made them long ago – not me.

But it’s not easy. It’s not a happy choice. It’s not a good choice, in many’s eyes, I’m sure – but for her it is the right choice. And I will live with having to make it for the rest of my life. But I will also live for the rest of my life, however long or short that may be, knowing I’ve done all I could and what we felt was best for her. She has fought me tooth and nail, even changing the locks to keep me out of the house and away from her business, and now she groans when I’m not there. My, how things change. How they heal. How they induce growth. How they make you a different person.

I have been many different people the past year and a half, through the worst of all of this – some not always graceful, some quite angry, some extremely depressed…and now, regardless of the amount of time left, I feel nothing but…strength. Courage. And love.

I will see you all on the flip side… Love one another. Be kind. And live with an open heart. 🙏❤️