Tag: autism

  • Unhidden

    Unhidden

    entry nineteen — scattered light, fractured grace: a quiet archive of light, loss, and what remains.
    Lumix GX7 + DistressedFX + Mextures

    I’ve been thinking about how easily we overlook what does not bloom on command. How quickly we decide something is less valuable when its rhythms are quiet or unusual or slow to reveal themselves. How we are conditioned by convenience to turn away from what requires a different or more tender kind of attention, unless we are its mother.

    As mothers, the expectations begin to pile up, even as the help quietly disappears… if it ever shows up to begin with. It showed up for me recently, with my son’s diagnosis of autism, and then the weight shifted again. The label alone added a layer of juggling and balancing that feels impossible, even in ways that his father may never fully know…

    …but these small remnants of #lovelydeadcrap in my backyard have been teaching me how to package it all and express what’s inside.

    Lumix GX7 + DistressedFX + Mextures

    In their faded textures and fragile lines, I find a gentler truth. Beauty is not always loud, nor peace immediate. Sometimes neither are easily interpreted. Sometimes they appear in the very things the world has already dismissed as unremarkable because they do not fit the desire or expectation.

    When my son was diagnosed with moderate to severe autism, the world tried to hand me a script of loss and limitation. But the more I sit with the reality of who he is and what I know he has experienced in his life, the more I understand that nothing essential has been diminished.

    Lumix GX7 + DistressedFX + Mextures

    Not unlike #lovelydeadcrap, the reality of his story simply asks to be read with a different kind of seeing. The light lands from another direction. The beauty moves at its own pace. That is what this winter season is teaching me:

    To honor what does not conform. To stay open to the quiet forms of life and value that do not perform for anyone’s comfort. To recognize that some truths require presence rather than projection.

    Lumix GX7 + DistressedFX + Mextures

    My son is not less. He is not broken. He is not something to mourn. He is fully himself, unfiltered and unhidden, and there is a sacred beauty in that.

    May we all learn to truly see what stands before us, not merely what we were taught to expect.

  • Always look up.

    Always look up.

    iPhone 17 Pro + DistressedFX + LR (watermark only)

    Always look up. Especially when you’re already shaken, don’t ever look down. That’s when you lose what steadiness you do have, and crash.

    This week hit hard. J was told he’s going on unpaid shutdown leave from Dec 15 until the second week of January. No vacation time, no cushion. At least not yet…maybe they’ll change their mind about that.

    It always makes me heartsick when companies do this to families in December, right before Christmas. Now, here we are, and I’m not sick about it. Just determined.

    This, after receiving the full evaluation for our boy yesterday, which finally gives us clarity… but also informs us that we have to get “further testing,” as if what he’s already been through and what we’ve already done couldn’t possibly be enough (money for them) for any referrals or disability help.

    I genuinely don’t know how we’re supposed to afford it with everything happening at once, but we will. If I don’t laugh in the face of it all (especially the system) believing God’s already got it handled, I’ll collapse under the weight of that situation alone.

    Christmas this year is going to be bare… at least materially. Some part of me feels immediate comfort, though, because I so intimately recognize this feeling… the gritty “underdog in a Christmas movie” version of life I’ve always known. Always the underdog…

    But the thing about underdogs? Most especially when they’re faithful and balanced in determination, heart and spirit, they always come out on top. Always.

    God is in this story. God is in the details. He always has been, and when I’ve followed His guidance and employed discernment, He has never turned away or left us. I’m holding onto that. That is my foundation.

    I have to do my part, though… so for that, besides us trying to pick up a seasonal job until this shutdown is over, I’ve created an Amazon wishlist for my boy. If the universe wants to make sure he gets a Christmas beyond my homemade treats, it will. And if not, he already knows he’s loved, supported, and my whole world.

    I’ve already got my Christmas miracle. That boy, and his precious heart.

    Merry Christmas and Happy Holidays,

    xo

    ❤️