When it comes to creating a more balanced, happy life, we often look to massive lifestyle shifts as the only solution. (If you, like me, have ever …Habits That Make Your Life Better Part 2
When it comes to creating a more balanced, happy life, we often look to massive lifestyle shifts as the only solution. (If you, like me, have ever …Habits That Make Your Life Better Part 1
TW: the dying experience. Do not read further if you can’t deal with that kind of reality, or if you’ve had a recent loss that this will gnaw at…
Seriously, I’m going to share this reality so don’t keep reading if you’re not comfortable with this type of thing. This is my coping mechanism. To write. To share with those who can handle and understand it. To feel like my support system is with me…
This morning around 3:30am my mom’s oxygen started dropping. First it was 92. Then it was 90. Then it was 88. Then it was 85. She kept yanking the oxygen away. I stuck it in her mouth until the higher dose of morphine kicked in and she relaxed. Then, I put it back in her nose.
I called the after hours line. I was told I was doing everything I needed to be. I mean, it’s kind of common sense at this point, after the others, for me – but that doesn’t mean adrenaline and norepinephrine don’t fly and dopamine and seratonin don’t plummet…and you need that reassurance because you second guess. You feel responsible for more than comfort. You feel responsible for the pain, too. You can’t help it.
I cranked the oxygen up to 3. I started giving half doses of morphine every 30 minutes. Her chest would rise when she gasped, then cave in. Then the fluid rattle started again with her shallow breaths.
She would draw up in a fetal position, moaning and gasping, still with oxygen in her nose but oxygen levels still rising and falling at will because of the mouth breathing and the breath holding and the inability to get enough oxygen with the fluid.
She has not eaten in 12 days. She has not drank in 3 days. She is in the final phase of the dying process. I knew that. I know that. But nothing prepares you for that. I am grateful that she is home, and that I moved here. I am grateful that it is not the nursing home I fought for, or the hospital, where I likely couldn’t be with her…where she would be alone.
I have laid with her – some would say a gift, and I agree…though in the moment it doesn’t feel like one. I suppose it will one day, just like with both my grandmothers, my Daddy, and Dorie, and pets… I held her hand. I cried silent tears, watching her face grimace and her eyes open with the moans only to reveal cloudy, lifeless eyes. I waited patiently for the nurse.
The nurse came at 8:30. Upon assessment, the things are happening. The limbs are cooling. The bp is dropping. The heart rate is rising. The temperature is rising as her core fights to hang on. All the things.
It could be today, it could be three days. It could be a week – probably not longer than that, because of the lack of food and fluid. I have chosen to make her comfort the priority, with oxygen, and liquid morphine and Ativan. Myself and the doctor have chosen to forego the feeding tube, and IV fluids. There is no point in drawing it out, and a DNR is a DNR – all those things are at this point are life support. She doesn’t want that. It’s documented. I will not allow myself to feel guilty for those choices. She made them long ago – not me.
But it’s not easy. It’s not a happy choice. It’s not a good choice, in many’s eyes, I’m sure – but for her it is the right choice. And I will live with having to make it for the rest of my life. But I will also live for the rest of my life, however long or short that may be, knowing I’ve done all I could and what we felt was best for her. She has fought me tooth and nail, even changing the locks to keep me out of the house and away from her business, and now she groans when I’m not there. My, how things change. How they heal. How they induce growth. How they make you a different person.
I have been many different people the past year and a half, through the worst of all of this – some not always graceful, some quite angry, some extremely depressed…and now, regardless of the amount of time left, I feel nothing but…strength. Courage. And love.
I will see you all on the flip side… Love one another. Be kind. And live with an open heart. 🙏❤️
One day, you will sit alone and look through old photos that seem like they were taken just yesterday but really, those moments are so far away. They’ve become memories, and a life that you once lived… Treasure good and happy, joy and thrill filled moments…indulge in those moments – whether experienced with those you care for or experienced alone – while you’re taking the photos and living the experience. Make them count. When they become just a memory, never look back at them with regret, because in those moments you were alive. You were living – not just existing. And being alive and not just existing is what life is really all about about. It is always “the good old days,” in one way or another… Never forget that.
“You’re gonna miss this
You’re gonna want this back
You’re gonna wish these days hadn’t gone by so fast
These are some good times
So take a good look around
You may not know it now
But you’re gonna miss this
You’re gonna’ miss this
You’re gonna’ miss this…”
To those of you who have commented on different posts, dm’d, texted, or even called and I haven’t been able to speak to you with everything going on, I’m sorry and I truly appreciate your kindness and your concern for my mom, for my son, for my family, and for me. It means so much – even if I can’t respond right away I see you and feel you there. Love y’all…so very much. It breaks my heart open to be able to receive, and thus continue to give, love…and have hope. ❤️
#memories #summer #goodtimes #wine #water #warmth #sunset #goodolddays #love #hope #gratitude #keepgoing #changeisinevitable #growthisnotlinear #growthisnecessary
I’m done, too…. Have been for quite some time now. I think it hit me when I worked so hard to repair a friendship and support the person’s new life not realizing or fully accepting that we weren’t really friends at all until I was accused of “stalking” because I added the person’s new boyfriend as a friend on a Facebook “without asking permission.”
Who the hell asks permission to be friends with a friend’s boyfriend if they are truly friends, especially when they are 30+ years older than you and it is extremely clear that you have zero interest in drama and only have an interest in getting to know and support people?
That experience taught me that it is very rarely about you but almost always about some insecurity or issue that someone else has when they do something completely ridiculous like that. I’d done nothing but prove myself forgiving, trustworthy and kind up to that point but that day, in the blink of an eye, I was done.
I was angry, and I was hurt. I’d done nothing but listen to this friend go on about not wanting to disappoint anyone by going on with life and had been encouraging and, I hope, uplifting about it all. I gave a hundred percent to making an effort to support this person’s new life and to encourage them to live it however they saw fit to live it, not worrying about the judgments of others.
I felt insulted and used as a human being. And, ultimately? It had very little if anything to do with me. It had to do with that person’s own lack of trust, whether in me or the boyfriend or whomever. It had to do with their lack of actual concern about me, and that day that lack of concern slapped me in the face out of nowhere.
That day, I didn’t give up on the person, I finally saw my own self worth and let that person go, like I should have done all the other times that person had walked out of my life, instead of trying so hard to make what was not meant to be in my life work in some way.
This post really spoke to me. Sometimes you’re gonna love or care for people at different levels and in different ways that are never going to truly care about you. Sometimes, they’re gonna say they do but their actions are actions that speak more loudly to their lack of care and concern than the other way around.
The following re-blogged post was me that day, and every day since in any situation where I feel used or mistreated, and I didn’t even realize it until this moment. I have learned to truly be done without questioning when my heart says it’s time.
It feels good to be done.
I have spent a lot of time thinking about this in the last couple of days: At this time in my life it’s not even about ups or downs or moods…it’s about bad days and good days. People say that you can choose to have a good day just by having a positive thought when you wake up, or by praying or meditating when you wake up – all sorts of different things like that, usually involving gratitude for something, even just life itself. I find that extremely difficult some days, and completely untrue on those days, as witnessed by my past couple of posts.
I don’t think that the power of positive thinking is always enough. There is nothing I can EVER do to change things with my mother. I can not cure dementia. I can not change her. I can not change the situation as it is at this time. Same thing with grief – I can not change the fact that my father and my best friend are dead. They are not coming back. In those instances, people will say it’s down to acceptance and that is true. I can get behind that, to some extent, although as most of you know I don’t believe in such a thing as an end to grief…
I was listening to music earlier while I was folding laundry and this song came on called, “Breathe Me,” by Sia. It hit me in my gut like a bad piece of chicken. We can take responsibility all we want to, we can take action all we want to, but sometimes it just hurts. Sometimes we are just lost. Sometimes we are just hurt. Sometimes we are just afraid. Sometimes we are all of those things and more, all at once, and we are completely overwhelmed. That’s where I’ve been.
Yesterday a friend of mine told me, “Now I’m gonna say this and I just want you to listen to me. I don’t want you to use (anything) as a crutch. You’re STRONG. You walk around with a shaved head because you want to! You don’t care what people think…” She went on… So last night I laid in bed, in my pitch black and freezing cold bedroom trying to stave off an impending migraine (unsuccessful, by the way), and I let all she’d said float around in my head. And ultimately, two things stood out to me.
I do have a crutch. It is alcohol. And it is a waste of time – it doesn’t accomplish anything positive, except momentary lapses in the ability to feel things. And, strength is relative. People see different things as examples of strength. The fact this person, who has been through more than I ever imagined when I first met her, completely rebuilt her life and walks around with such an air of confidence even my shaved head is in awe – for this person to say to me, “you are stronger than this. You ARE STRONG,” humbled me in a way that I couldn’t understand. Of course, that led to more thoughts and more considerations and a whole lot of writing in my journal…but I fell asleep knowing that I did not want to drink today.
And I didn’t.
And I don’t know why. I don’t know what changed.
I do know that by lunch time tomorrow I’ll be craving alcohol like the drought ridden fields crave rain…and I don’t know what I’ll do about that. Probably text or call her, or my cousin, or my therapist…maybe go to the feed store and hang out. I don’t know. But I do know this much – if you really want to make a change, you will do it.
I haven’t smoked in over 24 hours, haven’t had a drink in over 24 hours, and the only reason is because I just wanted to see if I could. I didn’t tell anyone until later in the day today, when I was at the feed store. I didn’t keep it to myself because I was afraid I would fail. I kept it to myself because I only wanted it to be about me and what I wanted.
I don’t know what tomorrow will bring. But I do know that I don’t feel the same way I felt a few days ago when I was battling the suicidal ideation and the complete lack of regard for my life, my health, or my Be-ing. I don’t know what changed… I think mostly, it was being seen, and being cared for, and being spoken to in a way that wasn’t at all what I expected.
I always said I would never allow another “Dorie” into my life – or at least that there would never be another her. I think I may have changed my mind…or my heart… You never know who is going to walk into your life, or when.
Today someone asked me a whole lot of questions about different things. The one that stuck out the most for me was about how I felt about dealing with the situation with my mother, and if I felt like a bad daughter. It didn’t take more than a nano second for me to yell, “HELL NO I don’t feel like I’m being a bad daughter – I think what’s going on is that I’m sick and tired of being treated like one.”
It’s triggering many things, from depression and hurt in general, to bad dreams and weird memories from my childhood… Not that life isn’t difficult for all of us at some point in time, and all the time for some people, but that’s the thing I’m feeling the most. It’s just all so difficult. I told my mother’s doctor just last week I no longer wanted to be her guardian (something I’ve been fighting to be named as for over a year) and that I was willing to lose the land and even my horses at this point if it meant that she was cared for. I feel like I just can’t deal with it anymore.
As far as drinking – I shared a while back that I was concerned about how much I was drinking. Truth be told I’ve been using alcohol as a sort of escape for a long time, just not to this level. I had quit for a while but I just picked it right back up because, well, in the simplest of terms, fuck it. I know it’s not the answer and I know it’s not healthy (at a number of levels) but right now I really just don’t care.
I really don’t care about anything right now… I feel very much like I could hide away and stay gone for a very long time and be perfectly OK with that. I really can’t even find my words today – which is also unusual.
I’m angry. I’m depressed. I’m not well. And honestly, I don’t care. I’m ok with not being ok. And right now I’m ok with drinking myself to death. I don’t care if that sounds selfish to some, or if it’s something others can’t understand. Raw me here. I don’t want to walk in these shoes anymore. I don’t really want to walk at all. And I’m not even writing this under the influence of alcohol. I’m also not writing it for attention. I write. That’s it.
This past week or so has been so crazy. I know – I’ve already written about that more than once. But tonight I want to write about how old I feel, and it’s BECAUSE of not just this past week (while the majority of it is) but of being my mother’s caregiver in general for the past few years.
In itself, caregiving gets old. But the way it makes you FEEL… Argghh! There are days when it doesn’t feel “like a gift to be able to care for one who once cared for you.” There are days that I don’t feel “grateful for the chance to give back.” Pfft. Let’s be real – it’s emotionally nasty. It’s a nasty, dirty, wreck of an emotional job and it SUCKS a LOT, a lot of the time.
That said, I still push on. As of now, as you all know, I don’t have any other choice.
In updates to my lasts posts about my mom, I’ve gone in to check on her and twice found her in the floor since those posts. There have been a couple of other issues that have come up (financial issues), and all she wants to talk about is going to buy a new computer. She doesn’t even have the Internet right now. She has an iPad. I explained this. She doesn’t NEED a computer, she needs to worry about us getting other issues sorted – namely her CARE. It’s just like she doesn’t NEED, nor can she have, her car.
She doesn’t – she can’t, or she refuses to even meet me halfway and try to – live in the reality that, as sad and frustrating and angering and annoying and depressing and ridiculous as it all is, especially for her, her life is not, can not, and will never be again what it used to be. I know that is awful for her…but it’s emotionally exhausting for me, too…
And you can’t ever make that make sense to them. You just can’t. It’s a losing battle to try, so you lie to them. You tell them, “maybe when you heal from this fall.” Then you say, “maybe we should give it just a couple more months.” Then you say, “maybe once we get the car fixed,” even though the car is not even broken. You make shit up. You LIE to your parent, even though as a child you were beaten for such nonsense. Like, BEATEN. With a hickory switch.
The role reversals are hard. They make no sense to my brain some days. Some days, despite the fact that my mother was never in my life like this for me, I want her to be my mother and hug me and tell me it will be OK and say comforting things like, “we’ll get through this,” or, “your daddy would be so proud of how much you’ve done here, and that you’ve worked so hard to get this back to a working farm.” It’ll never happen. It wouldn’t happen even if my mother didn’t have dementia/mental health issues. But as a child, I DO wish it would.
My life exhausts me. I get up early in the mornings, I take care of mama and the horses and chickens and everything. I come home and take care of my kiddo, we do things, whether it’s school or playing outside or whatever. I do housework and yard work at the neighborhood house. Then, after whatever other running around I’ve done all day (bank, post office, etc.), it’s back to the rinky dinky little farm I’m trying to build and mama’s, to either bring her home or to make sure she still IS at home.
By the time I sit down at dark, I feel like a little old lady who can hardly crochet anymore because of her aching, arthritic hands – and I only have slight arthritis/carpal tunnel – when I try to write or type these things out of myself. I feel like a firefighter who has been battling a blaze all day long in the hot summer sun. I feel like a marathon runner who has been training all day. I feel like a doctor who has been running all day long to go from this patient to that, this hospital to that office to this building to that, trying to make sure everyone is being cared for and check to see how they are and what they need and what changes need to be made, etc.
Yet, I’m nothing so achieved as a firefighter or marathon runner or doctor. I’m just little old me, wearing myself down to the core of my sanity and watching it start to spindle apart backward, one twist at a time coming off the spool and piling up in a big ball at my feet. Then I get tangled up in that ball, and start tripping over my own delusions and disillusionment and exhaustion and the anxiety and panic start to build and then the depression grabs on, you know, just for kicks, and I end up sitting in the pile of sanity that I used to have, having a complete come apart.
Does any of this make any sense? I don’t know if it does or not, if you’ve never been in a situation like this or at least somewhat similar to this. But I have a hunch that most of us have felt this way at least once – maybe more than once – just because…well, LIFE.
Life is a gift. Yes, it is. And I am so grateful to be alive. I just wish I felt it. I do, sometimes…but I fear I’m wearing that escape thin, as well. Perhaps I should just dwell on writing about the life I wish to live rather than chasing after one I can’t have right now…and another one I know I never will have (because some things are just not meant to be and not gonna happen…you know?). I’ll keep making music, and sometimes sharing it. I’ll keep playing with photos. I’ll keep hugging my son and my doggos and my gentle giants. Playing with my chickens, and with fire.
I’ll stay on the outskirts of my own chaos for as long as I can before I let it suck me in. I will make no promises on how long that will be.