Lube Up.

I have had disappointments. Struggles. Moments that I’ve lost faith in what I used to believe. Oh yes, more than a few. Like most lives, mine is sprinkled with the moments that passed me by, the opportunities I only saw in the rear-view mirror, hopes lost in the fading light of what I thought would be my day. Yet, here I am. Here we all are, those of us still here.

It has not all been easy. It has never been black and white. It has never been that simple – perhaps that is why I dream of adding color to it all in my creative endeavors. But I am not defined by my disappointments, nor am I confined by them. I am shaped by them, changed by them, but never owned by them. It is in the learning that I am set free: free to try again, or free to do my life differently.

I’m an intelligent and logical person but I’m also an empath. I am what many from childhood and even up til now have considered wasteful. You know, the uselessness of having a head in the clouds or a heart perpetually full of feelings and passion that are all an unproductive, non-conducive waste of time. Those things are true, taken to extremes they can be detrimental…but so can the excess of anger and judgment and many other things.

It is through all of my own experiences – especially the difficulties and painful experiences – that I have learned how to authentically be me and to make my soul characteristics, both the darkness and the light of it, not just my way of living but also my way of EARNING a living – because to be a creator is MY PURPOSE. Others don’t have to understand or relate to that – they don’t even have to respect it…they’re consuming what I’m bringing to the table and not bringing a plate to the potluck.

We ALL have a soul purpose. The world needs ALL of us, with ALL of our different gifts. Don’t put people down or judge them because they don’t live the life you would choose for yourself. Thank them, instead, for what they bring into your life with their differences.

The world needs construction workers and emergency services workers and doctors and nurses and teachers and IT people and factory workers and farmers and truckers and on and on to help it to run smoothly. Of course it does. OF COURSE it does.

But do you know what it also needs that just about every one of those “essential” people consume like vitamins? The light of the artists – the realms of the writers, the musicians, the deep thinkers, the actors, the comedians, the magicians, the drawers of magical worlds and the painters of scapes in sound or in color, or both all at once – to escape to.

The world NEEDS the creators of comfort and escape to help the “essential workers” to cope with the stresses of their lives serving others. It needs the creators to help to invent and build the world, but also to help the world remember it’s inner child – the one that existed before it was told it couldn’t be itself and had match the rules that killed it’s true joy – and hopefully in some small way to help that inner child stay alive.

The world needs the dreamers and those brave enough to share their wildest and craziest ideas and creations to help the world see beauty and creativity, to find inspiration, and maybe, in some ways, to heal.

The world needs ALL OF US, all the time.

What has not worked for me in my life has taught me the depths of who I am. It has also taught me the limits of who I am. What has worked for me may not be for everyone but it has helped me to shine when I want to hide in the dark, and the broken parts of me and my past are not monuments made of stone, nor have they turned ME to stone. They are, even at their worst, portals through which I travel into a better tomorrow…or the hope that I one day will.

The experiences I have had and will have are the tools through which I create, through which I manifest and through which I show others (if not by word then by example) exactly what thriving – not just surviving – is.

Or, that is my hope. That is my goal.

That is my heart, and it just wants to make a difference in the lives of struggling people by sometimes making them feel less alone in their darkness by being dark with it but also by helping them to escape through the magic that sometimes pours out of me.

Our magics and our roles may be different, but it takes us all to make the world a happy and comfortable and interesting place to be. So don’t down the dreamer. Don’t loathe the lover. Don’t hate the hurt – because hurt people hurt people. Don’t damn the already damaged.

Don’t waste your time or energy playing the role of jury or judge because you’re neither. That’s not the job of a single one of us. We’re just here to do whatever we do best, whatever drives us and serves the world for the better, and to love – because love is the center of everything, even logic.

We are energetic, crystalline beings living in physical, 3D bodies. We are souls that are taking residence in a vessel so complex we haven’t even completely figured the vessel out yet. There was a time where there was very few awakened souls here on earth, and now many are becoming awake to these truths.

That is the purpose for all of us. We are here to experience this realm of existence while it lasts and to do our soul’s job in this realm to leave it better than we found it. What’s so hard about that? Apparently a lot – perhaps that is why we also need philosophers and psychologists and theologians and spiritual intellectuals whose jobs are to help us to sort through the two realities of spiritual and human existence.

The synopsis? Different types of people with different goals in life really aren’t meant to rub each other with friction causing constant lifequakes (pun totally intended). They’re meant to grease each other up, like lube, if you will, so that we can move more easily through the time that makes up our human life and actually EXPERIENCE IT.

Start moving with life instead of trying to force it to be a certain way. Creating your life is a process. Lube up already. Otherwise, life’s going to keep being rough and leaving friction burns in your soul. 🤷‍♀️❤️

3AM Thoughts

We write to express. We music (yes, I just used music as a verb) to express. We art (again, verb) to express. We aren’t just what we create, we are the process of the creation. We are the verb. That is what it is about creating that makes it so fullfilling – the expression itself, as a verb and not as a product. So why do we get stuck?

3AM Selfie of “Stuck”

Well. I’ve been sitting here now for two hours and not only am I stuck on the music I have in my head but can’t seem to get to come out, but also on this post. I don’t know where to go from where I started. So, let’s converse in the comments instead. Let’s write this post together.

Do you get stuck? How do you get unstuck? Are we REALLY stuck or just on pause? What factors contribute to your blocks in creativity? What factors, environments, or actions contribute to removing those blocks for you? Let’s talk…

Thoughts from 1993

Ahhhhh memories. Snowmageddon in Alabama, this week in 1993.

I was 14, and I remember my dad yelling at me because I would not come inside once it started snowing. I had never in my life seen snow like this snow – I was completely fascinated. It was different snow. I swear it was physically different than any snow I’d ever experienced up until that moment in my life.

I remember being out there in the backyard, in the dark, at something like 11:30PM, bundled up and just sitting there letting the snow fall on my face and consciously feeling the snowflakes melt on my skin in a way that connected with my soul. I remember thinking about magic and all these ideas I had that were “sinful” according to the cult I was raised in but that were so beautiful to me and how it WAS magical, even if the biblical God created it.

Like, how could those two things not go together, in my mind? They believed in a “holy ghost” that they willingly allowed to possess them and speak in unknown languages through them that wasn’t supposed to be real unless someone in the immediate vicinity could interpret the message.

First of all, why couldn’t God just give it to them straight, and secondly WHY? That was me from about age 2 until the day I die. WHY? What? Constant curiosity. Constant trying of new things. Constant exploration of self and soul and consciousness and the physical earth. None of it ever made sense to me from a religious aspect. Why couldn’t it all just be signs and magic and the fates and wonder and beauty? I still want to know that – where do people go in their life experiences that makes them forget the magic? The spark? The music…?

And yet, here I am. Deep in the depression and what to others seem to be mere suicidal thoughts when those thoughts are really so much more than that. But, we will visit that notion a bit later on…

I remember the “good” things but I remember the “miserable” things, too. And in reality, they weren’t miserable things to me. No power? That’s fine. We had kerosene heaters and propane gas in a tank outside that I used to pretend was a horse and I couldn’t tell you how many cows I roped that were actually logs I’d stood on end or how many criminals I’d captured by shooting them in the leg with hip shots that were actually soda cans I was shooting with a BB gun. We were warm. It was fine.

I remember not having power because I remember the coolers on the back deck that were buried in the snow with all the cold stuff in them, and I remember my dad being a smart ass and using the BBQ grill with an iron skillet to cook eggs just because it was “a fun new way to grill chicken” even though we had a gas stove. Ha! But I remember being completely unbothered by the lack of power. Why? Because of the time I spent with my dad. I remember my dad building a snowman with me that he named Larry and making a tiny one with me that I named Mo.

Curly never got made (built) because that was my mom’s choice but she never came outside and my dad said that if Curly was being built she had to make him with us or her snowman wouldn’t be magical (without her energy in him), so there was no point building a snowman with no magic in him. My dad was an evangelical deacon and that was the first time I ever heard him mention magic from the perspective a kid would and not from the perspective of evil. My mom said to my dad, “oh, fiddlesticks. Magic is not reality.” I will never forget that. It crushed my soul in some way. What happened to the “magic” that had brought me into her life? Did that not exist anymore, or had it ever existed for her at all? That was heartbreaking to me.

My mom did play the piano, though. And instead of being filled with the sounds of Andy Griffith and Lucille Ball and Perry Mason, I was surrounded by the comforting sounds of old (what I thought at the time were just) Southern hymns like, “It Is Well,” How Great Thou Art,” and “I Surrender All,” and classical “hits” from Pachelbel’s “Canon” and beautiful Beethoven’s “Moonlight Sonata.” I adored Beethoven. I adored romantic era classical music. I adored music washing over me. I adored my dad’s voice. I adored singing with him. There was that…and laughter. Not so much my mom because she was busy with needlework and knitting and incessant organizing, but my dad and I were having a ball.

I remember walking in the woods behind where my grandmother’s giant garden always lived in a path he cut out for me in this deep ass snow – we walked to this specific place that he would often visit just to sit and reflect on life in the quiet (and magic) of nature, crossing the frozen and snow filled wet weather stream and climbing over mounds of snow on fallen limbs and logs on the way and me being glad the fae that lived in the holes in the bank had “moved away,” as my grandmother had told me, so that they weren’t blocked inside their little fairy houses and if they were ok (the fae in the holes turned out to be snakes, I later learned when I tried to catch a fairy at the age of 7 and ended up pulling out one of those little grey ring neck snakes that I tried to keep as a pet but that went suspiciously missing overnight, only later to learn that my father had let it go – I was so distraught and depressed by this reality that my grandmother literally told me they’d just moved away or gone on vacation and the snake was protecting their homes…ha!).

I digress – as usual… Anyway, we got to this specific place and my dad and I sat there on a log he had cleared of snow. He proceeded to have this talk with me about my religious beliefs and the difference between that and spirituality. He didn’t yell at me for being a sinner or for not believing in or for questioning the cult (obviously, he never thought of it that way but I always did – even before I understood cultism – it NEVER made sense to me how this was love and freedom). He simply quoted to me for the first time in context two scriptures that have always stuck with me (hey, the literature of the Bible is really rather brilliantly written – it has everything good and terrifying in it).

He explained his thoughts on death and salvation to me and I remember very specifically and vividly him saying to me that it didn’t matter WHAT I believed, really, about religion. What mattered was that there was, in his perception, absolutely life after death because how could there not be? Our souls had to exist before we were born in order for them to enter our bodies, he said, and so we must logically still exist once our bodies died. That made sense to me.

That was the day – maybe two days after the snow had fallen – that he told me that the only real truth was the truth in my heart, and that was always the truth I should follow – and seek out, and sometimes chase in times of great despair. “Wherefore, my beloved, as ye have always obeyed, not as in my presence only, but now much more in my absence, work out your own salvation with fear and trembling.” It’s Philippians. Chapter two I think (I’m not looking it up, I’m lazy right now).

And then he told me – at 14 and a fourth years old – something that I remember very clearly but am struggling with since he (since they all) died. “We all die, but we never leave the ones we love. I will always be with you. Our Gods may not have the same name but they are one and the same being – love (which I questioned deeply and still do because the God of the Bible is only rarely ever what I would call “loving” – he has to invent a son before he becomes that, which to me is kind of this whole personification of the experience of growing and learning and becoming better and letting go of who you thought you had to be in order for life and your world to work).

Then he quoted another scripture to me that has been my north node for the past five and half years since his death. “And Ruth said: “Entreat me not to leave thee, or to return from following after thee; for whither thou goest, I will go, and where thou lodgest, I will lodge. Thy people shall be my people, and thy God my God.”

I want to believe that they are still here. I used to be so faithful to the idea of spirit and energy that it didn’t matter whether I could see the energy with my eyes in a physical manifestation of itself – it was just there, even if it wasn’t, in some form. Now? I don’t know what I believe anymore. Do I still believe that? Absolutely. Scientifically. I mean, hello, gasses that can’t be seen or smelled but can still kill you. Energetic, invisible death.

But in that sense of spirituality and magic? How does that energy put pennies in my bathtub or place heart shaped rocks and leaves directly in my oath where there should not be rocks or random fallen leaves (like in paved parking lots or on concrete pathways in well manicured city parks? I don’t know. Where do the random smells of bacon cooking or the paper mill or even jasmine and smoke when no one is smoking (Dorie) come from? Where does the audible sound of the piano or a typewriter come from when there are no working typewriters in my house (a couple of broken ones, though) and no one is there but me and I’m not playing the piano?

Are these experiences a mere wishful figment of my imagination? Or are they my people, who are still in some way my people, that have not left me? DO THEY still dwell where I dwell, just in a different dimension?

I want to believe that. I choose to believe that. But sometimes that belief hurts…because when I “feel them there,” it’s not enough. I want to hug them and hold them and say the things I didn’t say to them and apologize for things I did say that I wish I hadn’t said. I want to feel their warmth and hear their breath and their voices. I long to just sit with them for a moment and hold their hands in mine. To sing with them. To laugh with them. To feel the safety and the gratitude of their physical presence. But none of our bodies are safe. They will die. They are literally dying now – and have been from the moment we were born. But what about our souls?

I want to go there. I want to know. So when I say I’m ready for that trip? It’s curiosity and it’s existentialism and it’s wonder and in all of my thoughts about it, that place is so much better than this one. It’s not that I don’t deeply love and want to be around the people I love and call friends and family now. It’s missing the soul connections with those people because the physical gets in the way of that in this society and in this world today. It’s not as magical as it used to be.

Things are no longer filled with so much color and shine – although for a moment they were again, for a recent moment…a moment I sometimes wish I’d never had now because the taste of that and then seeing the mirage that it was…that hurts almost worse than losing my people to death, because maybe, just maybe, they still exist where that never did.

These are the thoughts in my mind tonight – or this morning – at 3:33AM. I know they may sound a little delirious and maybe they are. Are my thoughts any more or less real than my soul? Or are they one and the same? This is why I studied and continue to study human behavior and human cognition and spirituality and philosophy. Because I NEED to know. And one day, I will. But not today – because today things need to be cleaned and washed and taught to the boy. So not today…and I should try again to sleep.

Spark, No Fire…

I feel like a lighter that is out of fluid. Like, myself and everyone around me keeps clicking me but just a tiny spark comes out and there’s no fluid to make the spark into a flame. LOL I have no idea if that makes any sense – it likely won’t because I’ve been very vague about what’s going on with me and my life (totally unlike me, I know) lately.

It’s a tough time. I don’t know what’s going to happen, and I don’t need to know – none of us, do really. I have been trying to remind myself that the Universe doesn’t care what MY plan is… Thing will always ALWAYS always work out the way they are meant to, no matter what our best intentions and efforts are. Have you ever noticed that?

The things that are meant to be truly do flow easily and quickly and fluidly, and the things that are not meant to be are the things that feel strained and difficult – things that make your heart hurt and keep you up at night trying to plan and plot your next move when the reality is you know and see what is right in front of your face but you can’t REALLY see because the forest always gets in the way of the trees.

We push on, though, don’t we. When do we finally say, “Ok, have it your way, Universe. You take my life and mold it.” When do we finally come to peace with what we already know about ourselves? When do we face our demons and change our ways? Usually when it’s too late. And it feels like that’s where I am now.
Maybe it’s time for another break…maybe it’s time to just let it all go… ((shrug))

Sometimes, when we feel like this, what we need is the same thing a dead lighter needs that’s running on fumes. It can still manage a flame, but it needs another lighter to get it’s fire from so that it can burn again. I have always tried to be that for other people…and sometimes failed… Right now, I need that – I need an established fire to help me burn again…without being the type of fire that will burn me to ashes.


“Before the soul can see, the harmony within must be attained, and fleshly eyes be rendered blind to all illusion.


No man can swim unless he enters deep water.” — Helena Petrovna Blavatsky

Devil’s Backbone (Again)

Some shots from Devil’s Backbone…

Also, had this on my mind tonight:

You don’t know what someone is dealing with…what they’re going through. Sometimes a person can be confident and also anxious, look healthy but be sick, look happy and be miserable, look good but feel ugly, act hopeful but feel hopeless, smile and be broken, or never smile at all and be happy… You don’t know. So unless you ask, don’t judge. Don’t assume. Sometimes a person you see every single day or think you know very well can be fighting battles you know nothing about.

Be kind.

It’s Mine, Not Yours…

We live in a society where it’s become more important to look cool and APPEAR happy on social media than it is to be a genuine person. That said, let me just start this post off with the main point and get it over with: I am unbothered by how bothered people (apparently) are that I have deactivated my public Facebook profile.

If it’s that important for people to discuss amongst themselves, to speak ill of it, to assume that it has something to do with them (apparently, several people decided that I had just blocked or removed them and that it was something personal to them), or to assume that my disappearance there (again – it’s not like I don’t take random social media breaks – clearly I take long hiatuses here, too, if you look at my post schedule for the last few years) has something very defining to say about the state of my mental health as though I don’t share openly about not only my mental health but my entire life EVERYWHERE: it’s just not that deep. It’s really not.

Neither my very open sharing nor my random complete vanishing acts are that deep. It’s not a plot, a ploy, or a campaign for or against anything. It’s just me being me, just like for the majority of everyone else it’s just them being them. It’s just being real. Authentic. Me. ((internal scream))

This post is for THOSE people – because those people will be people who know about this blog – and anyone else who ever negatively reacted to or spoke about a person they knew who decided to be “weird,” “mental,” “sensitive,” or viewed as otherwise abnormal because the person – GOD FORBID – deacctivated, deleted, hid, or removed a social media profile they didn’t want to have anymore.

Honestly. Get over yourselves.

I have long had the open opinion that social media is the devil more than the angel in the “devil/angel/shoulder” triad. I’ve always been super verbal about this. I have also, however, always been a person who subjugated myself to the BS that social media tends to inevitably be and bring because I often feel as though I MUST meet the social requirements of family and friends who “won’t see or know what is going on with the boy” or “in my life” if I’m not on (specifically) Facebook (because, you know, THAT is the one EVERYBODY uses).

Admittedly, and especially during the time that my mom was sick or during times when I’ve had a lot going on emotionally during COVID and isolation, I have spent a lot of time on the book of faces sharing my thoughts and baring my soul. It’s easy to do when you keep a limited friends list (mine has been between 50 and 60 people, mostly family for a few years now).

It always starts the same way when I get back on the social medias: I reactivate or rejoin so that I can be in these groups (mostly private ones) for support around certain causes (with mom it was dementia, and I’ve also been heavily active in other groups about everything from specific mental health issues like anxiety and depressions to coping with alcoholism to photography to coping mechanisms and grief to writing prompts to cleaning tips and online, chronological recipe roledexes)…but I ALWAYS end up wanting to educate my f-list about things or share with people that I THINK are close and real friends (and let’s be fair – 80% are) only to end up offending someone because I have an opinion, EVEN if they agree with the opinion but don’t think it is something I should share on the interwebs.

So, now that an entirely too long preface to the fruit of this post (despite the fact that I started this post with my main point) is finished – clearly, my long form writing is out of practice – let me share with you this glorious, foggy Sunday morning (where I am) my list of 5 things that I have considered at length over recent days and feel that every person should remember (or be reminded not to forget if they haven’t already forgotten these things):

1. Social media is preferred by most to be an illusion of a FAKE existence/reality and you can’t be a genuine and 100% authentic person on social media without being punished or judged by SOMEONE at SOME POINT. End of story.

2. Nobody cares. It sounds apathetic, but it’s true. The majority of people on public social media (not your close friends on your private posts, necessarily) DO NOT CARE about anything you post unless it is a picture of something they find aesthetically pleasing or that they think is hilarious (think, for the most part, kittens and other baby animals). They do not want to read words and they do not care to expand their mind or expound on their thoughts (or yours). Personally, I even (and, frequently) get insulted for USING WORDS, big and small, too much on social media. Go figure, right? ((dry laugh))

3. If you already struggle with mental health issues like depression and anxiety or personal issues like lack of self-esteem, self-confidence or self-love, SOCIAL MEDIA WILL MAKE THOSE ISSUES WORSE and contribute to your pain more than it will help you to face your demons and grow (again, in some cases people have used social media to overcome certain fears and issues, and there are some wonderful private groups on social media and many sites and forums online that are incredibly helpful for some people, but for the most part it (public social media) is not a safe or healthy place for the already struggling mind/psyche).

4. Just like in real life (haha), people do not want you to genuinely love them, genuinely try to get to know them, genuinely take interest in them as an individual human being, or genuinely give them the benefit of the doubt when it comes to what shreds of truth and actuality they share on social media. They just want a lot of likes and compliments.

And, on that same note, those SAME people will be the people who ALWAYS pop up in your comments with some negative or completely abject and contradictory (to their own actual existence – because they’ll basically say that something is OK for them but not for anyone else) stance on posts that (again) really aren’t that deep. “Opinons are like assholes, everybody has one,” and if you don’t want to be shit on? If you’re going through a period where you are feeling less than or a time during which your skin is pretty thin? Stay off of social media.

5. Finally, the last but main point to remember when it comes to being on social media in 2020: at the end of the day, no matter how much you fight and bleed and protest and try to explain to the world through words and pictures what is wrong and how to fix it when it comes to political and social issues? The best way to accomplish that is STILL and always will be grassroots movements and activism, whether through writing or speaking, and otherwise making your voice heard in your own local communities and branching out from there.

You’ve got to remember that social media is just a bunch of noise at this point – a bunch of people with the intellectual advancement of a kindergardener (smart and not so smart kindergardeners) all yelling and raising their voices at once to share opinons, not facts, without first raising their hands and asking questions or hearing the objective opinons and voices of reason from people who know what the hell they are actually talking about.

Sorry, Trump fans, but it’s very much like Trump sitting in a briefing with Dr. Fauci to be briefed about COVID, not paying a lick of attention because he already has his mind made up and believes that he knows everything and doesn’t need one of the top infectious disease doctors in the world to help him (depsite the privilege that that is, in reality), and then getting on the podium in front of the whole nation and rambling on about how he is the most terrific person ever doing all the greatest and most wonderful things, playng down COVID in the few words that he uses to mention it, making a few insults about the intelligence of everyone in the nation for being anxious or afraid concerning COVID, calling leading doctors and professionals unintelligent and telling people to drink clorox (he says it was taken out of context, but…uhhhhh), going back to talking about himself for a bit longer, and then ending on a note of, “you’re stupid, this is not reporting, you’re a moron because you care about facts and not how wonderful I am, sit down, you’re fake news….”

Seriously. That’s what social media has turned into…

And, that’s why I needed a break from it – espeically now, during all of these insane election happenings… I would rather read a 20-minute read time blog post that educates me about something than look at your pointless meme about Trump’s tan or Biden’s age (and information skewing memes about dementia when you’ve never lived with, cared for, or been a caregiver to a person who actually HAS dementia), or waste my time trying to talk to people who are SO comitted to seeing the world in literal black and white and not understanding that there is SO MUCH GREY AREA and so much we can learn from each other’s thoughts and experiences.

Ultimately, for the people who inspired this post? My social media is mine, not yours. And yours is yours and no one else’s, so you should do with yours whatever you well please to do with it but don’t forget the realities shared above and don’t let it stress you out too much…and if it does or it begins to? Write it out elsewhere – in a blog, or even a text to me or a close friend. I mean, really – talk it out, whatever thing is bothering you. You do what you do, but don’t let social media have SO MUCH CONTROL over your life.

Sigh… I hope you’re all doing well. Thank you for listening to (reading) my rant. Please, share your thoughts and experiences in the comments. And? Look for photoblogs and random fun things from me in the coming hours and days. I went so far as to literally run away from my house I was so sick (physically) and stressed out. Minicay = photoblogs for your enjoyment, coming soon…

Excerpts from counseling chats, #1

The last few years culminated into feeling like a dream for the last several months – I have literally survived, I realize now, by living in a whole non-reality, on autopilot, and there are very few everyday experiences and mundane daily tasks that I do now without being in an almost confused state. Like, “what is this?” or, “how did I ever do that…I don’t remember…”

I am beginning to realize that I actually exist – and can exist – as a being separate from continuous worry and fear about/for my mother, and I have completely forgotten how to be that person. I still wake up some mornings, if I’m not already at my moms, with this programmed state of, “I have to go check on my mother,” being the first literal and conscious thought in my head. Even if I stay there, which I haven’t been able to peacefully do yet, I find myself in the mindset that I have to get up every few hours to check and feel guilty when I wake up and think I forgot to set alarms to wake up.

Everyone says, “it’s got to be such a relief, though, since she died…” It is, in some ways. But in others, it is the same, just different, level of stress to readjust to “normal,” which is difficult now anyway because WHAT IS NORMAL in a world of COVID? I focus myself on cleaning and doing what needs to be done before anything else (music, photography, etc.) when the things I used to do I was only able to do mindlessly, really – just as a distraction from insanity.

I don’t know if this will make sense to anyone who reads. It has to sound like the ravings of a lunatic mind – but as I’m remembering my intelligent, creative, indulgent, passionate, and subconscious mind I find myself feeling everything from confusion to guilt to elating freedom to even complete blankness and emptiness.

It’s not the grief. Well, it’s partially that but only about 3/4. I don’t know, in this moment, WHAT the word or feeling or experience is. I remember going to through it to some extent after Dorie died and I had been such an integral part of taking care of her, but it wasn’t the same as this, nor was the care.

24/7 worry and anxiety about someone for years, and then 24/7 for months – even to the point of every single daily task they needed to do and then to the point of helping them through every moment of their death…it’s a completely different experience to readjust to existing without that task attached to your back when it was there for so long.

So yeah, you’d think it’d be lighter, more peaceful existence…but it’s actually more like a feeling of chaos. I hope like hell it doesn’t last long. I have too much to do – and, too much I want to do. I assume it will last through and a bit beyond probate because that limits me on the speed at which I can chose to move forward and move on… If it were up to me, I’d snap my fingers and life and the “me” I was “pre-Alzheimer’s parent” would click right back into place.

We don’t get into any state of being in the blink of an eye and we become the next version of ourselves even less quickly, I suppose. That’s been my past experience. So trudge along and get it done, I guess… ((Yawn.))

🤷‍♀️

Dementia, a Mother, and an Adopted Child

**Edit: my mother passed away 26 hours after I posted this.**

About five months ago, my mother was mentally bad and had wandered and broken her arm. Three and a half months ago I brought her home from the hospital. For years before this, from about six months after my dad died, I had struggled and fought for her and tried to care for her but she didn’t want to let me. I heard, “I am FINE,” at least 72,000,000 times. We had all made jokes about her condition – jokes about “NaNa” – jokes about how bad she was getting, “but there was nothing we could do…” Yet, I still fought…and I know those battles, and they’re why I’m here tonight.

I wish we hadn’t done that…made jokes, because it’s not funny. But I’m glad I never stopped fighting, even if we never had the mother/daughter relationship I always wished we’d had and even if I didn’t get her the help she needed WHEN she needed it because of a broken system that doesn’t correctly diagnose dementia/Alzheimer’s until it’s too late to really slow it down. It shouldn’t be this way – not with the research and the knowledge we have, medicine we have, and resources we have in this country.

I am at peace with the fact that I did my best – that I did everything I could. I don’t need to be externally validated for that…but it makes me feel and have almost a need to validate others who are or have been or will be in my shoes. All these years…they’ve culminated so quickly – in just a matter of weeks.

Three months ago, my mom looked like this (first photo) when I picked her up from the hospital. Tonight, she looks like this (second photo), grimacing and clenching in pain, almost choking on even oral liquid Ativan and Morphine, and her own phlegm and fluid, coughing like a weak squirrel, moaning and crying out in pain to the God that she believes in and still praying incessantly (again, quietly like a weak squirrel, but in pain all the same, barely able to verbalize it).

Dementia and Alzheimer’s are considered mental health issues and illnesses. Don’t tell me you can’t SEE IT because “it’s a mental disorder.” You CAN see it, right there on the MRI. Don’t tell me it’s not real or difficult or physically painful because it’s JUST a “mental disorder.” That’s what I was told for so many years – she’s just getting older. She’s just getting forgetful. She’s just having “mental problems” because of age. No – not just mental problems. A DISEASE – and a terminal one at that.

And you know what else? Especially if you’re a doctor? Don’t pretend to care when you don’t. When you belittle. When you get annoyed with children who are fighting for a better life and end for the parents. Don’t pretend to advocate because for the moment you feel sorry for someone. Don’t pretend like you’re Gucci just because you give to this or that charity or “buy your way” out of having to actually GIVE CARE.

You know what means even more than your charity checks and your “honest opinions” to families struggling with ANY illness or disease or end of life process when you follow up your explanations with the words, “we care?” When you SHOW THE FUCK UP for them.

I am showing up, mama, and even when you don’t want me here, here is where I will be. Too little too late to heal all the old wounds, but not too late to SEE that bygones can be bygones, and despite all of our bad times, all of the good you’ve done for me.

I’m so sorry for the hell, all the chaos I brought to you. I’m sorry for all the hurtful words and for all the times I fought you. I’m sorry I’m not the daughter you’d always hoped I’d be, playing the philharmonic or writing novels or preaching the gospel…but so many of the good things I am are things that you taught me.

“I didn’t carry you in my belly for nine months, but I carried you in my heart for a lifetime,” is what you’d often say to me…and that “to do your best and leave the rest,” was sometimes the only way to be. These words I’ve never forgotten and these words I’ll never forget.

I will soon, again, be an orphan, a fate you once saved me from…and with these fleeting last moments I am sorry. I know I was wrong. I’ll always be a daddy’s girl, and this always broke your heart…but the reality I thought you lived in was creating jealousy into art. But I always had a mom…

I understand your love tonight and what made you who you are…and that even though we aren’t the same we aren’t that far apart. I want to say, “it’s ok, let go,” though it truly breaks my heart…because I understand after all these years who you really are.

Rest now, precious woman, I know you did your best…and your best was really always enough, though I often put you to the test. I thought you didn’t love me, but you just loved me in your way…and, “rest now, precious woman,” is all I can seem to say…