The Mighty Oak Will Kill You

I mediated this morning on something that I told my child last night when he asked for advice about why someone in his life did what they did and about why it hurt him. I told him that this the person who had hurst him was not yet coursgeous enough to heal himself before he broke someone else, and that it hurt him because he cared about this person.

He depended on this person to not hurt him. He believed in this person. And for a child, that’s really scary and difficult because as a child you’re still learning to process emotions and understand what emotions are. It takes maturity at multiple levels to remain calm and to not hurt a child with you words. I suppose the same is true for adults – especially the way we treat and speak to ourselves.

So, I went on this very deep, very enlightening almost hour long soul journey with my own meditative backing track (coming soon, shameless plug) and it was one of those meditative experiences where you’re doing your meditative thing (eyes closed, body relaxed, going within your deeper, inner being and connecting with it) and it hurts.

It burns. It stings. It aches. Tears roll down your cheeks even though your eyes are closed. You feel every needle the porcupine of life has shot into you. But you keep going and you find yourself at the edge of your inner self and inner peace and you step into it, and you bathe in it’s light. While you’re there, you see things about yourself for what they are.

What did I see within myself? That being strong doesn’t require being fearless – it’s facing the fears that create the strength in the first place. That protecting yourself doesn’t require meanness, it requires patience and love. And, that being guarded and angry doesn’t deflect the things you don’t want to see as much as it blocks your blessings and wastes valuable energy and time.

This is hard. This process is one we are faced with numerous times in our lives. My son was faced with it for the first time last night, and I shared some of my experiences with him and it helped me to remember things that current shadows have been hiding: We learn as we go, but we don’t learn unless we put in the effort to do so.

We all know it takes more strength to be kind and to love anyway than to run. But if I didn’t run from my demented mother who randomly beat me with a cane because of her disease, if I handled that and still did my job as a daughter and in the role I was thrust into as her death doula…and I did it mostly on my own (because I was dealing with absent people and also still blocking spirit and blessings for so long), I can handle just about anything, right?

((Please note, there is a difference between running from yourself because of self-doubt and walking away from toxicity because of self-confidence. There’s always two sides to these memes. There’s always two sides to everything – and often a lot of gray.))

Personally, I am really struggling with a lot of negative and toxic emotions toward my body right now – and with a lot of negative and toxic energy surrounding me. The things my body and I have faced in the past two years have been unforgiving at times, almost suffocating at others. They’ve been so difficult, and continue to be in some moments. But that’s the thing. It’s moments. You learn to rest in the moments that you have to – especially in the moments that you NEED to – but not give up completely.

You learn to be ok with the fact that venting your fears and anger and concerns about things is NOT always “just complaining” and it’s not being ungrateful. It’s COPING. It’s figuring things out. It’s keeping your own balance. Because you can’t thrive in ANY way without balance. You learn that a response of kindness and empathy and gentleness is more powerful than a response of coldness and lack of depth.

After all, look at nature – what’s more beautiful and pleasant? The colors, the beauty, and the warmth of spring and summer and fall or the harshness and bone chilling cold of winter? Can winter be beautiful? Sure. But is it as pleasant and comfortable and conducive to joy? No – that’s why so many people struggle with seasonal affective disorder.

You very literally see that the people who told you throughout your life that you have to be good with yourself before you can be good with anyone else, and that you won’t have true peace until you do the work to heal yourself, was telling you the truth. You won’t ever find peace of mind and true and lasting joy in your soul until you learn to sit in the darkness and kill it with your own inner light and magic. And you have that. You ARE that. You are magic. You are made of literal “stardust,” for Christ’s sake.

Shine like you’re supposed to. Don’t let your circumstances and your old wounds or should have could have would haves or even the opinions and actions of others put out your light and stop you from sparkling like the diamond you’re supposed to become under pressure. If my mom’s stuff taught me anything, it was the harsh reality of that. Pressure and pain can grow you into a brilliant diamond or petrify you into a bland and plain stone.

Don’t let it be the latter. Don’t let your heart become petrified and your mind become stagnant. You aren’t here to be a rock, or you’d have been created as a rock that just lays there on the ground and does nothing. You’re here to LIVE. Not just survive, LIVE. In order to do that, you have to mind the diamonds – you HAVE TO DO THE WORK.

As I find myself struggling with my body, and with random triggers of mom grief (that’s a whole other blog) I’m not making the same mistakes I’ve made in the past and choosing to hide away or beat myself up (and thus, others). I’m going to continue to grow and one day I’m going to bloom, and y’all are all going to watch me do it. Actions speak louder than words, even as loud as words can be screamed.

I’ve been here before but I’ve learned and grown. After my last episode with my health, with depression and the thoughts that ran through my head, I’m terrified of only one thing: dying knowing I haven’t given all I could give or done the work I needed to do to live well and in peace and thus bring peace and joy to others. But, that work I can only do that for myself, with my own choices and actions. It’s a conscious choice we have to make over and over in our lives.

It was a conscious choice with a lot of conscious effort behind it to fight my body’s BS before, to fight depression, to fight my self doubt, to heal traumas and wrongs inside myself – especially around my mom so that I could care for her when there was no one else to do so. The shadow work had to be done. I took my little soul chainsaw and cleaned out the vines and the poison ivy and the dead trees of my past and my experiences and do you know what I find, over and over again? Baby trees. New growth that needs room to become.

There are stumps and scars in the garden of my soul that still feel tender sometimes but they remind me that I CAN heal and I have many times. The more times you go through this process, the more you learn to listen to spirit and see the signs and open up the natural spiritual gifts that we all have, the more you realize that nothing is ever in your control and that most of the time, when you stand like the oak, you’re standing in your own way.

You realize that when you break, that oak is gonna fall hard and it’s gonna crush anything in its way, and you’re going to be the one who has destroyed all the good you couldn’t see while you were fighting for more more more and fighting to look strong and hide your truth and avoid other people rather than to be your authentic self and to SHOW UP, for yourself AND for those you care about.

Vulnerability bends. Vulnerability can move with the moment – it can handle the pressure without breaking. It gives, it sways with the energy. And when the hurricanes and tornadoes and even the weight of the winter ice come, it can withstand them, because in reality? Softness is stronger than hardness when it comes to humanity and the soul.

It’s a metaphor we’ve been presented with eleventy hundred times in eleventy hundred ways in our lives: The oak is the ego. The willow is the soul. Don’t let your ego break you and those you care for. Don’t let your ego block your blessings and destroy your soul. Your peace and your heart (and the peace and hearts of others) are worth way more than that. Keep it open.

The more you give, the more you receive – even if it doesn’t come from where you are directing it. Life will surprise you. Let it surprise you with gifts, not problems. And remember, you create so much of both in the tiniest actions and choices you make.

I Chose the 4D/5D

It is fundamentally and intellectually RIDICULOUS to see the truth in front of your face and continue to convince yourself to live a lie.

It’s one thing to not have proof and to question and seek and try to find clarity. It’s another thing completely to KNOW and to still defend something that has proven itself over and over again to be false…and so many things are.

If you can’t get out of the thoughts of the 3D and into the flow of acknowledging the feeling and truth in the 4/5D long enough to realize that everything is not as it appears in a physical sense then you’re never going to find your actual truth and live an authentically happy and peaceful life.

“There has to be balance. If you can’t find that, it’s because you’re not trying. And if you’re not trying, you have only yourself to blame” (that’s me speaking to me).

WE ARE NOT SEPARATE FROM EACH OTHER, no matter how badly we want to believe we are, in the 3D experience of life. If you haven’t allowed yourself to experience any thought pattern or existence other than that, you’re really missing out – you’re not authentic at all. It’s not all about you. It’s about the collective.

Lest we forget we have extremely short physical lifespans and we live on one of many “big rocks in the sky.” There is a whole universe – physically and spiritually – to explore. Yes, there is order in the natural world but that order comes from complete chaos. How is that not abundantly clear and obvious?

I don’t understand a “black and white” existence. I will never be convinced that’s all there is because I have experienced so much more. I have seen – and lived – in the technicolor realms of the “more” that so many people roll their eyes at. Once you go there, you can never go back to the mundane. And you’ll never want to. True story. The mundane will never again be enough.

“You perceive the world through 6 senses and your intuition starts to grow and expand. You seek a deeper meaning to life and you can start to see the synchronicity/magic of the Universe.” That’s where I prefer to be – I don’t live from my mind. I live from my soul. It’s not always easy but it’s always more fulfilling. Always.

Understanding the 3 States of Consciousness: 3D, 4D, and 5D

I learned…

You have the power to overcome conditioning –
especially conditioning you’ve done to yourself…
Patterns.
Obstacles.
Regrets.
Even fears.
It takes bravery, but it rests within you.
Be compassionate toward yourself,
Believe and see – you have the ability to heal the wounds that bring your anger,
that slice you open,
that feel like ghosts who just won’t follow the light and leave you be…
Forgiveness of self,
understanding is yours…
Now take the reigns and seek the changes,
do not doubt,
do not fear.
Know that you can change these patterns –
thoughts,
wants,
expectations of self…
You can do so much,
you can pray so much,
you can love so much –
others and yourself.
But
life will always happen
on life’s terms.
There is no other way.
Understand that no matter what you have chosen
or what you choose,
what you know,
or think you know,
what you wish for,
or what you loathe,
life will rise and fall,
come and go.
There is true peace to be found,
and felt…
but only within yourself,
and only when you let go and allow it…
only when you give yourself the opportunity
and the gift you need…
Only you know what that is.
It’s the only way.
~C.

Thoughts from 1993

Ahhhhh memories. Snowmageddon in Alabama, this week in 1993.

I was 14, and I remember my dad yelling at me because I would not come inside once it started snowing. I had never in my life seen snow like this snow – I was completely fascinated. It was different snow. I swear it was physically different than any snow I’d ever experienced up until that moment in my life.

I remember being out there in the backyard, in the dark, at something like 11:30PM, bundled up and just sitting there letting the snow fall on my face and consciously feeling the snowflakes melt on my skin in a way that connected with my soul. I remember thinking about magic and all these ideas I had that were “sinful” according to the cult I was raised in but that were so beautiful to me and how it WAS magical, even if the biblical God created it.

Like, how could those two things not go together, in my mind? They believed in a “holy ghost” that they willingly allowed to possess them and speak in unknown languages through them that wasn’t supposed to be real unless someone in the immediate vicinity could interpret the message.

First of all, why couldn’t God just give it to them straight, and secondly WHY? That was me from about age 2 until the day I die. WHY? What? Constant curiosity. Constant trying of new things. Constant exploration of self and soul and consciousness and the physical earth. None of it ever made sense to me from a religious aspect. Why couldn’t it all just be signs and magic and the fates and wonder and beauty? I still want to know that – where do people go in their life experiences that makes them forget the magic? The spark? The music…?

And yet, here I am. Deep in the depression and what to others seem to be mere suicidal thoughts when those thoughts are really so much more than that. But, we will visit that notion a bit later on…

I remember the “good” things but I remember the “miserable” things, too. And in reality, they weren’t miserable things to me. No power? That’s fine. We had kerosene heaters and propane gas in a tank outside that I used to pretend was a horse and I couldn’t tell you how many cows I roped that were actually logs I’d stood on end or how many criminals I’d captured by shooting them in the leg with hip shots that were actually soda cans I was shooting with a BB gun. We were warm. It was fine.

I remember not having power because I remember the coolers on the back deck that were buried in the snow with all the cold stuff in them, and I remember my dad being a smart ass and using the BBQ grill with an iron skillet to cook eggs just because it was “a fun new way to grill chicken” even though we had a gas stove. Ha! But I remember being completely unbothered by the lack of power. Why? Because of the time I spent with my dad. I remember my dad building a snowman with me that he named Larry and making a tiny one with me that I named Mo.

Curly never got made (built) because that was my mom’s choice but she never came outside and my dad said that if Curly was being built she had to make him with us or her snowman wouldn’t be magical (without her energy in him), so there was no point building a snowman with no magic in him. My dad was an evangelical deacon and that was the first time I ever heard him mention magic from the perspective a kid would and not from the perspective of evil. My mom said to my dad, “oh, fiddlesticks. Magic is not reality.” I will never forget that. It crushed my soul in some way. What happened to the “magic” that had brought me into her life? Did that not exist anymore, or had it ever existed for her at all? That was heartbreaking to me.

My mom did play the piano, though. And instead of being filled with the sounds of Andy Griffith and Lucille Ball and Perry Mason, I was surrounded by the comforting sounds of old (what I thought at the time were just) Southern hymns like, “It Is Well,” How Great Thou Art,” and “I Surrender All,” and classical “hits” from Pachelbel’s “Canon” and beautiful Beethoven’s “Moonlight Sonata.” I adored Beethoven. I adored romantic era classical music. I adored music washing over me. I adored my dad’s voice. I adored singing with him. There was that…and laughter. Not so much my mom because she was busy with needlework and knitting and incessant organizing, but my dad and I were having a ball.

I remember walking in the woods behind where my grandmother’s giant garden always lived in a path he cut out for me in this deep ass snow – we walked to this specific place that he would often visit just to sit and reflect on life in the quiet (and magic) of nature, crossing the frozen and snow filled wet weather stream and climbing over mounds of snow on fallen limbs and logs on the way and me being glad the fae that lived in the holes in the bank had “moved away,” as my grandmother had told me, so that they weren’t blocked inside their little fairy houses and if they were ok (the fae in the holes turned out to be snakes, I later learned when I tried to catch a fairy at the age of 7 and ended up pulling out one of those little grey ring neck snakes that I tried to keep as a pet but that went suspiciously missing overnight, only later to learn that my father had let it go – I was so distraught and depressed by this reality that my grandmother literally told me they’d just moved away or gone on vacation and the snake was protecting their homes…ha!).

I digress – as usual… Anyway, we got to this specific place and my dad and I sat there on a log he had cleared of snow. He proceeded to have this talk with me about my religious beliefs and the difference between that and spirituality. He didn’t yell at me for being a sinner or for not believing in or for questioning the cult (obviously, he never thought of it that way but I always did – even before I understood cultism – it NEVER made sense to me how this was love and freedom). He simply quoted to me for the first time in context two scriptures that have always stuck with me (hey, the literature of the Bible is really rather brilliantly written – it has everything good and terrifying in it).

He explained his thoughts on death and salvation to me and I remember very specifically and vividly him saying to me that it didn’t matter WHAT I believed, really, about religion. What mattered was that there was, in his perception, absolutely life after death because how could there not be? Our souls had to exist before we were born in order for them to enter our bodies, he said, and so we must logically still exist once our bodies died. That made sense to me.

That was the day – maybe two days after the snow had fallen – that he told me that the only real truth was the truth in my heart, and that was always the truth I should follow – and seek out, and sometimes chase in times of great despair. “Wherefore, my beloved, as ye have always obeyed, not as in my presence only, but now much more in my absence, work out your own salvation with fear and trembling.” It’s Philippians. Chapter two I think (I’m not looking it up, I’m lazy right now).

And then he told me – at 14 and a fourth years old – something that I remember very clearly but am struggling with since he (since they all) died. “We all die, but we never leave the ones we love. I will always be with you. Our Gods may not have the same name but they are one and the same being – love (which I questioned deeply and still do because the God of the Bible is only rarely ever what I would call “loving” – he has to invent a son before he becomes that, which to me is kind of this whole personification of the experience of growing and learning and becoming better and letting go of who you thought you had to be in order for life and your world to work).

Then he quoted another scripture to me that has been my north node for the past five and half years since his death. “And Ruth said: “Entreat me not to leave thee, or to return from following after thee; for whither thou goest, I will go, and where thou lodgest, I will lodge. Thy people shall be my people, and thy God my God.”

I want to believe that they are still here. I used to be so faithful to the idea of spirit and energy that it didn’t matter whether I could see the energy with my eyes in a physical manifestation of itself – it was just there, even if it wasn’t, in some form. Now? I don’t know what I believe anymore. Do I still believe that? Absolutely. Scientifically. I mean, hello, gasses that can’t be seen or smelled but can still kill you. Energetic, invisible death.

But in that sense of spirituality and magic? How does that energy put pennies in my bathtub or place heart shaped rocks and leaves directly in my oath where there should not be rocks or random fallen leaves (like in paved parking lots or on concrete pathways in well manicured city parks? I don’t know. Where do the random smells of bacon cooking or the paper mill or even jasmine and smoke when no one is smoking (Dorie) come from? Where does the audible sound of the piano or a typewriter come from when there are no working typewriters in my house (a couple of broken ones, though) and no one is there but me and I’m not playing the piano?

Are these experiences a mere wishful figment of my imagination? Or are they my people, who are still in some way my people, that have not left me? DO THEY still dwell where I dwell, just in a different dimension?

I want to believe that. I choose to believe that. But sometimes that belief hurts…because when I “feel them there,” it’s not enough. I want to hug them and hold them and say the things I didn’t say to them and apologize for things I did say that I wish I hadn’t said. I want to feel their warmth and hear their breath and their voices. I long to just sit with them for a moment and hold their hands in mine. To sing with them. To laugh with them. To feel the safety and the gratitude of their physical presence. But none of our bodies are safe. They will die. They are literally dying now – and have been from the moment we were born. But what about our souls?

I want to go there. I want to know. So when I say I’m ready for that trip? It’s curiosity and it’s existentialism and it’s wonder and in all of my thoughts about it, that place is so much better than this one. It’s not that I don’t deeply love and want to be around the people I love and call friends and family now. It’s missing the soul connections with those people because the physical gets in the way of that in this society and in this world today. It’s not as magical as it used to be.

Things are no longer filled with so much color and shine – although for a moment they were again, for a recent moment…a moment I sometimes wish I’d never had now because the taste of that and then seeing the mirage that it was…that hurts almost worse than losing my people to death, because maybe, just maybe, they still exist where that never did.

These are the thoughts in my mind tonight – or this morning – at 3:33AM. I know they may sound a little delirious and maybe they are. Are my thoughts any more or less real than my soul? Or are they one and the same? This is why I studied and continue to study human behavior and human cognition and spirituality and philosophy. Because I NEED to know. And one day, I will. But not today – because today things need to be cleaned and washed and taught to the boy. So not today…and I should try again to sleep.

Death, Grief and Inexplicable Nightmares

Ugh. Nightmares. I’m just about tired of them.

It does NOT phase me to be with someone when they die. I mean, I don’t see it as a negative experience. I’m good at being fully present for another person’s death. I’m good at opening my heart. Letting the energy flow. I’m good at holding hands and holding space and saying the words that you say to dying people, helping them to let go. Lord knows I’ve done it enough times.

It does NOT freak me out or make me uncomfortable to be around dying people. I know it’s part of life. It doesn’t scare me. It doesn’t make me feel weird or distressed.

In fact, death is one of the most peaceful things I’ve ever been around, in the moment that it takes place. It’s the getting there that is hard and sometimes scary and painful. It’s the living part that is hard. And the grieving. The being “left.” Dying? Dying is easy.

Everything goes quiet – even amongst all the noise, whether it’s chaos or just the whines and whooshes of machines that surround it. Everything goes still for that one, solitary moment…the one when you hold your breath as you wait to see if they’re going to take another one…and then, when they don’t…the release of your own long held inhalation.

I have seen them leave, and I always wonder where they go. What’s really next…? Are they still there, in a different plane of existence? Did they see a light? Did they know they were dying? Did they see something beautiful, or did they see nothing at all?

I mean, there are gross things about it – certain smells and things they do sometimes at the moment after dying, as the body releases them…it’s not “pretty” all the time but it’s not…it’s not that terrible to me, that moment. In that moment, they have something I don’t have: real peace, and the knowledge of what comes next. It’s relief. It’s that final endeavor of living.

I find death to be one of the most precious moments you can share with another human being. And so very often, it feels like a gift…

So why these nightmares. Why? My therapist says I’ve been through a multiple year long trauma that ended with holding another person’s hand as they died. I don’t feel like I’ve been through a trauma. I feel like I shouldn’t be having nightmares. Especially not ones in which my kid is dying.

Maybe I AM losing my mind. Maybe it’s the fact that I’m the only one left of that little family unit that was my family unit all my life. No grandparents. No parents. No brothers or sisters…or are there, somewhere? Maybe that’s it… The fact that I was adopted never phased me, until now. I never really had questions. I never really wondered. I just knew that I was blessed to have a home and to be loved. Not that I’m not now… I just…as we ease up on the one month mark since my mom’s death, something weird is happening inside of me.

WTF, dude. I don’t know…

Excerpts from counseling chats, #1

The last few years culminated into feeling like a dream for the last several months – I have literally survived, I realize now, by living in a whole non-reality, on autopilot, and there are very few everyday experiences and mundane daily tasks that I do now without being in an almost confused state. Like, “what is this?” or, “how did I ever do that…I don’t remember…”

I am beginning to realize that I actually exist – and can exist – as a being separate from continuous worry and fear about/for my mother, and I have completely forgotten how to be that person. I still wake up some mornings, if I’m not already at my moms, with this programmed state of, “I have to go check on my mother,” being the first literal and conscious thought in my head. Even if I stay there, which I haven’t been able to peacefully do yet, I find myself in the mindset that I have to get up every few hours to check and feel guilty when I wake up and think I forgot to set alarms to wake up.

Everyone says, “it’s got to be such a relief, though, since she died…” It is, in some ways. But in others, it is the same, just different, level of stress to readjust to “normal,” which is difficult now anyway because WHAT IS NORMAL in a world of COVID? I focus myself on cleaning and doing what needs to be done before anything else (music, photography, etc.) when the things I used to do I was only able to do mindlessly, really – just as a distraction from insanity.

I don’t know if this will make sense to anyone who reads. It has to sound like the ravings of a lunatic mind – but as I’m remembering my intelligent, creative, indulgent, passionate, and subconscious mind I find myself feeling everything from confusion to guilt to elating freedom to even complete blankness and emptiness.

It’s not the grief. Well, it’s partially that but only about 3/4. I don’t know, in this moment, WHAT the word or feeling or experience is. I remember going to through it to some extent after Dorie died and I had been such an integral part of taking care of her, but it wasn’t the same as this, nor was the care.

24/7 worry and anxiety about someone for years, and then 24/7 for months – even to the point of every single daily task they needed to do and then to the point of helping them through every moment of their death…it’s a completely different experience to readjust to existing without that task attached to your back when it was there for so long.

So yeah, you’d think it’d be lighter, more peaceful existence…but it’s actually more like a feeling of chaos. I hope like hell it doesn’t last long. I have too much to do – and, too much I want to do. I assume it will last through and a bit beyond probate because that limits me on the speed at which I can chose to move forward and move on… If it were up to me, I’d snap my fingers and life and the “me” I was “pre-Alzheimer’s parent” would click right back into place.

We don’t get into any state of being in the blink of an eye and we become the next version of ourselves even less quickly, I suppose. That’s been my past experience. So trudge along and get it done, I guess… ((Yawn.))

🤷‍♀️

The End of the Road (Last Blog Before My Mother Died)

TW: the dying experience. Do not read further if you can’t deal with that kind of reality, or if you’ve had a recent loss that this will gnaw at…







Seriously, I’m going to share this reality so don’t keep reading if you’re not comfortable with this type of thing. This is my coping mechanism. To write. To share with those who can handle and understand it. To feel like my support system is with me…







This morning around 3:30am my mom’s oxygen started dropping. First it was 92. Then it was 90. Then it was 88. Then it was 85. She kept yanking the oxygen away. I stuck it in her mouth until the higher dose of morphine kicked in and she relaxed. Then, I put it back in her nose.

I called the after hours line. I was told I was doing everything I needed to be. I mean, it’s kind of common sense at this point, after the others, for me – but that doesn’t mean adrenaline and norepinephrine don’t fly and dopamine and seratonin don’t plummet…and you need that reassurance because you second guess. You feel responsible for more than comfort. You feel responsible for the pain, too. You can’t help it.

I cranked the oxygen up to 3. I started giving half doses of morphine every 30 minutes. Her chest would rise when she gasped, then cave in. Then the fluid rattle started again with her shallow breaths.

She would draw up in a fetal position, moaning and gasping, still with oxygen in her nose but oxygen levels still rising and falling at will because of the mouth breathing and the breath holding and the inability to get enough oxygen with the fluid.

She has not eaten in 12 days. She has not drank in 3 days. She is in the final phase of the dying process. I knew that. I know that. But nothing prepares you for that. I am grateful that she is home, and that I moved here. I am grateful that it is not the nursing home I fought for, or the hospital, where I likely couldn’t be with her…where she would be alone.

I have laid with her – some would say a gift, and I agree…though in the moment it doesn’t feel like one. I suppose it will one day, just like with both my grandmothers, my Daddy, and Dorie, and pets… I held her hand. I cried silent tears, watching her face grimace and her eyes open with the moans only to reveal cloudy, lifeless eyes. I waited patiently for the nurse.

The nurse came at 8:30. Upon assessment, the things are happening. The limbs are cooling. The bp is dropping. The heart rate is rising. The temperature is rising as her core fights to hang on. All the things.

It could be today, it could be three days. It could be a week – probably not longer than that, because of the lack of food and fluid. I have chosen to make her comfort the priority, with oxygen, and liquid morphine and Ativan. Myself and the doctor have chosen to forego the feeding tube, and IV fluids. There is no point in drawing it out, and a DNR is a DNR – all those things are at this point are life support. She doesn’t want that. It’s documented. I will not allow myself to feel guilty for those choices. She made them long ago – not me.

But it’s not easy. It’s not a happy choice. It’s not a good choice, in many’s eyes, I’m sure – but for her it is the right choice. And I will live with having to make it for the rest of my life. But I will also live for the rest of my life, however long or short that may be, knowing I’ve done all I could and what we felt was best for her. She has fought me tooth and nail, even changing the locks to keep me out of the house and away from her business, and now she groans when I’m not there. My, how things change. How they heal. How they induce growth. How they make you a different person.

I have been many different people the past year and a half, through the worst of all of this – some not always graceful, some quite angry, some extremely depressed…and now, regardless of the amount of time left, I feel nothing but…strength. Courage. And love.

I will see you all on the flip side… Love one another. Be kind. And live with an open heart. 🙏❤️

Dementia, a Mother, and an Adopted Child

**Edit: my mother passed away 26 hours after I posted this.**

About five months ago, my mother was mentally bad and had wandered and broken her arm. Three and a half months ago I brought her home from the hospital. For years before this, from about six months after my dad died, I had struggled and fought for her and tried to care for her but she didn’t want to let me. I heard, “I am FINE,” at least 72,000,000 times. We had all made jokes about her condition – jokes about “NaNa” – jokes about how bad she was getting, “but there was nothing we could do…” Yet, I still fought…and I know those battles, and they’re why I’m here tonight.

I wish we hadn’t done that…made jokes, because it’s not funny. But I’m glad I never stopped fighting, even if we never had the mother/daughter relationship I always wished we’d had and even if I didn’t get her the help she needed WHEN she needed it because of a broken system that doesn’t correctly diagnose dementia/Alzheimer’s until it’s too late to really slow it down. It shouldn’t be this way – not with the research and the knowledge we have, medicine we have, and resources we have in this country.

I am at peace with the fact that I did my best – that I did everything I could. I don’t need to be externally validated for that…but it makes me feel and have almost a need to validate others who are or have been or will be in my shoes. All these years…they’ve culminated so quickly – in just a matter of weeks.

Three months ago, my mom looked like this (first photo) when I picked her up from the hospital. Tonight, she looks like this (second photo), grimacing and clenching in pain, almost choking on even oral liquid Ativan and Morphine, and her own phlegm and fluid, coughing like a weak squirrel, moaning and crying out in pain to the God that she believes in and still praying incessantly (again, quietly like a weak squirrel, but in pain all the same, barely able to verbalize it).

Dementia and Alzheimer’s are considered mental health issues and illnesses. Don’t tell me you can’t SEE IT because “it’s a mental disorder.” You CAN see it, right there on the MRI. Don’t tell me it’s not real or difficult or physically painful because it’s JUST a “mental disorder.” That’s what I was told for so many years – she’s just getting older. She’s just getting forgetful. She’s just having “mental problems” because of age. No – not just mental problems. A DISEASE – and a terminal one at that.

And you know what else? Especially if you’re a doctor? Don’t pretend to care when you don’t. When you belittle. When you get annoyed with children who are fighting for a better life and end for the parents. Don’t pretend to advocate because for the moment you feel sorry for someone. Don’t pretend like you’re Gucci just because you give to this or that charity or “buy your way” out of having to actually GIVE CARE.

You know what means even more than your charity checks and your “honest opinions” to families struggling with ANY illness or disease or end of life process when you follow up your explanations with the words, “we care?” When you SHOW THE FUCK UP for them.

I am showing up, mama, and even when you don’t want me here, here is where I will be. Too little too late to heal all the old wounds, but not too late to SEE that bygones can be bygones, and despite all of our bad times, all of the good you’ve done for me.

I’m so sorry for the hell, all the chaos I brought to you. I’m sorry for all the hurtful words and for all the times I fought you. I’m sorry I’m not the daughter you’d always hoped I’d be, playing the philharmonic or writing novels or preaching the gospel…but so many of the good things I am are things that you taught me.

“I didn’t carry you in my belly for nine months, but I carried you in my heart for a lifetime,” is what you’d often say to me…and that “to do your best and leave the rest,” was sometimes the only way to be. These words I’ve never forgotten and these words I’ll never forget.

I will soon, again, be an orphan, a fate you once saved me from…and with these fleeting last moments I am sorry. I know I was wrong. I’ll always be a daddy’s girl, and this always broke your heart…but the reality I thought you lived in was creating jealousy into art. But I always had a mom…

I understand your love tonight and what made you who you are…and that even though we aren’t the same we aren’t that far apart. I want to say, “it’s ok, let go,” though it truly breaks my heart…because I understand after all these years who you really are.

Rest now, precious woman, I know you did your best…and your best was really always enough, though I often put you to the test. I thought you didn’t love me, but you just loved me in your way…and, “rest now, precious woman,” is all I can seem to say…