I can’t sleep, so…here are some trees. #ilovetrees
Also, two things are heavy on my mind tonight, both I feel like sharing because two other friends have shared these same thoughts in the past day:
The “I never let my pain/disability/illness stop me” narrative is ableist and harmful. Sometimes, even with illnesses that aren’t considered chronic but pop up just long enough to make you have to see a doctor/go to the ER and piss you off, you ARE held back/unable to do all the things. And guess what? That’s ok. You shouldn’t be made to feel guilty about it just because someone else doesn’t understand (or simply refuses to entertain the idea that you shouldn’t have to suffer just for the sake of “pulling yourself up by the bootstraps” – people like that have health issues way earlier than they’d prefer, and if they don’t want to acknowledge it that’s their cross to bear).
Stop the testing. Bring back the joy. When you sit in front of a kid with a stopwatch to time them on ANYTHING, whether it’s speed reciting multiplication tables or the alphabet or the periodic table, and they aren’t fast enough to beat the clock, they feel embarrassed, like they’ve failed or let down someone they are supposed to impress, or worse – they just feel plain stupid. Guess what? They’re not. Kids learn at different paces and have interests and greater abilities in different areas – JUST LIKE ADULTS DO. Some are good at labor. Some are good at creative endeavors. Some are good at organizing. Some are good at service. EVERYONE is needed. If you’re putting a bunch of rules (besides actual grammar rules) on reading and writing, and putting a bunch of pressure on a kid to meet some ridiculous and possibility unattainable standard (for them), you’re not teaching them to read or write well – nay nay, my friend. If that’s how you’re teaching? You’re teaching them to HATE reading and writing – even about the things they love.
Anyway, just some “unpopular opinions” that I have been arguing with myself about for a little while now.
Do good. Be kind. Be compassionate. And remember, all of those things are verbs, not just words. You’re not perfect either, so give others a break – especially when they’re already down. Try offering a hand to lift them up instead of a foot to the side while they’re down that makes them not WANT to get up. People need help, not hate. One day, you’ll need help, too. Love y’all. 🙏
You never know where the road is going to take you. Be careful with yourself. Don’t abuse yourself or others, or take your body (or life) for granted.
One day you may be in a situation where you don’t know what’s next for it – and whether you believe me or not, or like it or not, or think it’s a dramatic statement or not, I don’t care – it’s a terrifying and uncomfortable place to be, especially when you have small children.
It’s funny how you can be considering the future, looking forward and not behind, but feel as though you are watching your past happen all over again – and you never expected it and thought you’d done everything to prevent it from ever being this way again. Well. When it comes to the body, and to life, really, sometimes things just happen.
Sometimes things happen and they’re scary and they’re hard and you can’t talk about it because…well, no one will understand and you don’t want anyone to act a certain way, or maybe you just don’t want to be vulnerable because you’re already possibly more vulnerable than many people assume.
You don’t mean to be vague but you are just doing the best you can to process your own existence – and you have no clue. None. Not even a tiny one. You’re just waiting. You’re waiting because it’s deja vu and you know what happened then; but, it’s also a different experience and you know it’s “now,” not “then,” but you’re gun-shy from the last experience…so time is the only source of answers, if time or answers even exist.
Life is like driving a car. You can drive all you want, but you never really have power or control over anything. Forces far greater than you do – and sometimes they’re not kind. And, if you think you do have everything under control? It’s an illusion.
Don’t delude yourself. You’re going to be in a world of hurt at some point, if you do. Don’t forget that when you dance, eventually you have to pay the band.
Don’t assume you know people. Don’t assume you know what’s going on in their life. Don’t judge based on what you THINK you know, because in reality? You don’t know squat except about yourself. Focus on that, unless you do know facts and you can be of some emotional or physical help in someone’s life.
That’s what the last few years have taught me, in being treated like crap, and allowing myself to be used by people and abused by the medical system. Did it make me stronger? Wiser? Yes. Did it hurt? Badly? Also, absolutely yes.
Don’t be a selfish jerk. Do good. Be gentle. Be compassionate. Be kind. Do all those things for yourself and for others. Make it a great day. I love you all. ❤️
So very true. Expand your mind. Don’t allow yourself to become stagnant, or, worse yet, frozen in time like this camellia in my backyard this morning.
The brain naturally shrinks with age, despite being filled with this “knowing” stacked upon that “knowing,” even without trauma or defects caused by medical situations or diseases.
…with increasing age and there are changes at all levels from molecules to morphology. Incidence of stroke, white matter lesions, and dementia also rise with age, as does level of memory impairment and there are changes in levels of neurotransmitters and hormones. (NCBI)
It’s hard enough to remember what you already know as you get older, but the best thing you can do for yourself is to continue to learn – even if that includes unlearning only to relearn from a different perspective. The only way to slow the shrinkage is to continue to learn.
Read. Think about things in an interactive way. Write. Do things to exercise your brain, whether with puzzles or word games or just deep conversations with yourself in thought. Train (and/or retrain) your mind. Remain active in mindful and conscious ways. You’ll thank yourself for it.
I suppose this is a big deal to me because of physiological psychology and being a scholar in that field, but more than anything it comes from what I watched my mother suffer as she deteriorated from the added and horrific bonus of early onset dementia that turned to Alzheimer’s.
Take care of your mind. Fertilize it. Grow it well. Maintain it. Keep it in bloom. ❤️
This is how I “mom.” My mom “mommed” like this a couple of times in my life and now that she’s gone those couple of moments are the ones I remember the most. Reading this reminds me to do this for myself more…sometimes, we forget – especially when we don’t have anyone reminding us. This is your reminder.
Do good. Be gentle. Be compassionate. Be kind. Do all those things for yourself and for others. Have a beautiful day.
The whole world paused this morning. Do you know why? Because an 8 year old’s tank was empty.
The boys had already started their school day at their desks and I was preparing to leave for work when I noticed my littlest standing in the bathroom wiping his face.
I paused at the door and asked if he was okay. He looked up with tears silently dripping and shook his head. When I questioned if something happened, again he shook his head.
So I sat on the side of the tub and pulled him in my lap. I told him sometimes our heart tanks feel empty and need to be refilled.
He cried into my chest and I held tight.
I asked if he could feel my love filling him up?
A nod, and tears stopped…
I waited a minute…
“Has it reached your toes yet?”
He shook his head no…
“Okay man. We will take as long as you need. Work doesn’t matter right now. School isn’t important either. This right here, is the most important thing today, okay? Filling you back to the top. Is that good?”
One more minute…
“Is your heart full of mamas love now?”
looks in his eyes
“I see it shining in there, you’re full to the top, and you’re smiling!”
You may not be 8 – you may be 28, 38, 48 or whatever- but ALL of us run on empty just like he did. His week was so busy and so full and his little soul was just dry!
We all have to pause, and take a moment to refill with the good things. prayer, sunshine, laughter, friends, hugs. Refill your empty, or you’ll find those emotions (tears, anger, snappy words) overflowing with no reason why.
Take a moment. Refill. It’s the most important part of your day! ❤
Yesterday I texted a couple of people to tell them directly about my lupus diagnosis and I said, “I win! Yay!” One of them texted me back saying nothing but, “it’s not a game or a competition.” I said, “well I didn’t mean it that way – I sarcastically meant I win at life… Kinda like when I say ‘fuck doctors’ ftw (for the win).”
So here’s the thing…
I say off the cuff, smartass things like that because I feel exactly the opposite – that’s what sarcasm is to me. It’s me being “darkly positive.” It’s me feeling like I’m speaking power into my body and soul to deal with myself. They told me that was unhealthy. I thought, “so is being depressed and/or suicidal but because that can’t be seen it’s not real to you…” Which mindset is healthier? People are funny. Especially when they beat you down for things that are EXACTLY like their own mindset or behavior but it’s fine for them, just not for you. 😂
Anyway, the only other thing they said was that I needed to go raw because that was the only way to eliminate chemicals from my diet and I thought, “yeah, that doesn’t work for me, either.” Do you know how much it costs to eat a raw, actually chemical free diet? We do. We did it for about six months when they told me I had celiac disease. It cost us around $200 a week to buy just groceries and eat/cook from home, and I was the only one eating the “healthy” food while the boys continued to mostly eat their normal, less expensive food.
The point of me mentioning this is to remind you all that the government controls every aspect of our lives for profit. Break it down and you’ll see the proof. They know that they can’t make money off of our health conditions if they make easy solutions to them readily available because then we won’t need medicine. Case in point? Dandelions that grow in your yard and the pesticides to kill them versus the story they feed us about how much more beautiful our yards are to be “weed free.” And we fall for it. Because clearly one of the most beneficial plants for our bodies shouldn’t be allowed to grow in our own yards for free. The FDA doesn’t WANT you to be healthy. It wants you to depend on big pharma and the medical business in America (and around the world) so that people that aren’t meager pheasants can put money in their pockets and keep us pheasants dependent on things we can’t provide for ourselves. Why do you think there are so many laws and restrictions on things that would make living a fully self-sustainable life easy to achieve?
That’s not a conspiracy theory. It’s just common sense. 🤦♀️🤷♀️ Otherwise, why would diabetes medication and chemo and even some of the meds they want to put me on cost so much that you have to work a second job (like my dad did for years) just to stay alive? That’s why so many people are flocking to alternative lifestyles…
The point is this: I talked about this because I wanted support from my friends to help me deal with the changes ahead, not to be told how to handle it. I’ve got it handled. It’s my body and my life and I’m the only one responsible for making it good. But it’s nice to know that people are there to listen and be a part of your community. That’s why people say, “if you need anything, let me know.” Right? That’s what friends are for. I try to offer support to my friends, no matter what I’m dealing with personally…and lord knows I’ve been dealing with health stuff for a long time. But if you’re someone who I love and care about, I’m ALWAYS there – until you tell me not to be. I’m grateful for the handful of people in my life who are understanding and receptive as well as giving of that…
This is an example of the rampant idealistic oversimplification that is the new norm in the mental health sphere. It is the equivalent of victim blaming.
Many things cause stress, anxiety and depression. LIFE is just stressful for a lot of people depending on MANY factors. Coffee can cause anxiety all by itself and how many people choose to drink coffee everyday and then wonder why they’re anxious? Depression can be caused by behaviors like this – yes. But it can also be caused by a myriad of other things, including hormones, chemical imbalances, foods we eat (and don’t eat), things we drink (alcohol is a huge one), drugs we take (prescription and illegal, alike), situations we are facing, the list goes on and on.
For some, not even meds can change their brain chemistry. Even though there are coping tools and meds, some people have depression that is literally found to be untreatable even with extensive treatment measures. This is one of those new age bullshit statements made by someone who has no idea what clinical depression is. Statements just like this are the ones that cause many people the most hopelessness because the only solution offered is “it’s your fault, get over it.”
This is a judgement of depression, not a valid statement made based on the understanding of the clinical diagnosis of it. It is the makeup of people who want to come across as enlightened humans, but are really more devolved than evolved. Stop trying to simplify something and tell people basically that it’s their own fault they have these struggles and this is how to fix it.
Stuff like this pisses me off as both a highly educated and qualified mental health professional and as a person who has struggled with depression and anxiety all my life – even as a child as young as 6 years old. If anything outside of the physiological caused it and it was shaped and conditioned into me, it was my mother and religion – point blank period, that’s the only reason. And that’s just simply untrue. Conditioning by our environment may be a part of it but for most people who struggle with anxiety and depression it’s not just environmental and it’s not related to stress alone – stress is a part of EVERYTHING that is wrong with us.
Conditioning may be a major issue for some but what about people who grow up with super amazing childhoods having all their needs met, who are successful and don’t want or need anyone else, who are secure in themselves…and yet still are found dead one day from suicide? What about them? These issues have no limits. They touch people of all circumstances, ethnicities, religions, lifestyles, etc. These conditions don’t care – you can literally have the perfect life and still struggle with these issues.
This type of new age “I know what I’m talking about” expression is the kind of thing can cause someone to truly believe that it’s “their fault” they’re the way they are and if/when they try to address it and it doesn’t work because memes and quotes like this – while true for some situational events – are spreading misinformation (because – let me reiterate in case you didn’t understand the first time – these things are over-simplifying a MAJOR ISSUE that requires a MUCH deeper understanding and often professional help) that may make people just feel like they’ve failed. Then maybe they go kill themselves. Who knows.
Please do not assume you have to conform to generalized thinking. If you are struggling with depression, please please seek help that is useful. I’m not sure the resources in the UK and other countries but here are some US resources. They’re always available and always free, for a start. Please, utilize them. You matter and are cared for, despite feeling that you may not be.
National Suicide Prevention Lifeline – 1-800-273-8255
Crisis Text Line, if you don’t want to speak – text HOME to 741741 for free, 24/7 crisis counseling.
SAMHSA (Substance Abuse and Mental Health Services Administration): 1-800-662-4357
I have had disappointments. Struggles. Moments that I’ve lost faith in what I used to believe. Oh yes, more than a few. Like most lives, mine is sprinkled with the moments that passed me by, the opportunities I only saw in the rear-view mirror, hopes lost in the fading light of what I thought would be my day. Yet, here I am. Here we all are, those of us still here.
It has not all been easy. It has never been black and white. It has never been that simple – perhaps that is why I dream of adding color to it all in my creative endeavors. But I am not defined by my disappointments, nor am I confined by them. I am shaped by them, changed by them, but never owned by them. It is in the learning that I am set free: free to try again, or free to do my life differently.
I’m an intelligent and logical person but I’m also an empath. I am what many from childhood and even up til now have considered wasteful. You know, the uselessness of having a head in the clouds or a heart perpetually full of feelings and passion that are all an unproductive, non-conducive waste of time. Those things are true, taken to extremes they can be detrimental…but so can the excess of anger and judgment and many other things.
It is through all of my own experiences – especially the difficulties and painful experiences – that I have learned how to authentically be me and to make my soul characteristics, both the darkness and the light of it, not just my way of living but also my way of EARNING a living – because to be a creator is MY PURPOSE. Others don’t have to understand or relate to that – they don’t even have to respect it…they’re consuming what I’m bringing to the table and not bringing a plate to the potluck.
We ALL have a soul purpose. The world needs ALL of us, with ALL of our different gifts. Don’t put people down or judge them because they don’t live the life you would choose for yourself. Thank them, instead, for what they bring into your life with their differences.
The world needs construction workers and emergency services workers and doctors and nurses and teachers and IT people and factory workers and farmers and truckers and on and on to help it to run smoothly. Of course it does. OF COURSE it does.
But do you know what it also needs that just about every one of those “essential” people consume like vitamins? The light of the artists – the realms of the writers, the musicians, the deep thinkers, the actors, the comedians, the magicians, the drawers of magical worlds and the painters of scapes in sound or in color, or both all at once – to escape to.
The world NEEDS the creators of comfort and escape to help the “essential workers” to cope with the stresses of their lives serving others. It needs the creators to help to invent and build the world, but also to help the world remember it’s inner child – the one that existed before it was told it couldn’t be itself and had match the rules that killed it’s true joy – and hopefully in some small way to help that inner child stay alive.
The world needs the dreamers and those brave enough to share their wildest and craziest ideas and creations to help the world see beauty and creativity, to find inspiration, and maybe, in some ways, to heal.
The world needs ALL OF US, all the time.
What has not worked for me in my life has taught me the depths of who I am. It has also taught me the limits of who I am. What has worked for me may not be for everyone but it has helped me to shine when I want to hide in the dark, and the broken parts of me and my past are not monuments made of stone, nor have they turned ME to stone. They are, even at their worst, portals through which I travel into a better tomorrow…or the hope that I one day will.
The experiences I have had and will have are the tools through which I create, through which I manifest and through which I show others (if not by word then by example) exactly what thriving – not just surviving – is.
Or, that is my hope. That is my goal.
That is my heart, and it just wants to make a difference in the lives of struggling people by sometimes making them feel less alone in their darkness by being dark with it but also by helping them to escape through the magic that sometimes pours out of me.
Our magics and our roles may be different, but it takes us all to make the world a happy and comfortable and interesting place to be. So don’t down the dreamer. Don’t loathe the lover. Don’t hate the hurt – because hurt people hurt people. Don’t damn the already damaged.
Don’t waste your time or energy playing the role of jury or judge because you’re neither. That’s not the job of a single one of us. We’re just here to do whatever we do best, whatever drives us and serves the world for the better, and to love – because love is the center of everything, even logic.
We are energetic, crystalline beings living in physical, 3D bodies. We are souls that are taking residence in a vessel so complex we haven’t even completely figured the vessel out yet. There was a time where there was very few awakened souls here on earth, and now many are becoming awake to these truths.
That is the purpose for all of us. We are here to experience this realm of existence while it lasts and to do our soul’s job in this realm to leave it better than we found it. What’s so hard about that? Apparently a lot – perhaps that is why we also need philosophers and psychologists and theologians and spiritual intellectuals whose jobs are to help us to sort through the two realities of spiritual and human existence.
The synopsis? Different types of people with different goals in life really aren’t meant to rub each other with friction causing constant lifequakes (pun totally intended). They’re meant to grease each other up, like lube, if you will, so that we can move more easily through the time that makes up our human life and actually EXPERIENCE IT.
Start moving with life instead of trying to force it to be a certain way. Creating your life is a process. Lube up already. Otherwise, life’s going to keep being rough and leaving friction burns in your soul. 🤷♀️❤️
First of all, this post is not an April Fool’s joke. That’s just how ironic and hilarious my life likes to work out.
I saw this and it led to thoughts. Since I have nothing better to do besides lay here right now, and read and write, I thought, “let me share my thoughts…”
You cannot touch the depths of another until you have touched the depths of your own soul.
If you love yourself for your achievements, your current assets, the way you do things and handle the world—and despise yourself for failure in the same—it follows that your relationship with another will also be transient and superficial.
To achieve deep and lasting love of another person, you need to first experience the depth within yourself—an inner core that doesn’t change with time or events.
If it is the true essence, it is an essence shared by the other person as well, and deep love becomes unavoidable.
Rabbi Tzvi Freeman”
The thoughts this led to on this unexpected day?
I may not have time for material things anymore. And I’m ok with that. All I’ve ever wanted was to love and be loved – not necessarily romantically or in any specific way…just respected. And right now, unrelated to this shared post, really, I’m in love with my doctor in a professional way because he is being forthright, knows not to hide his concerns from me, and is concerned to the point that he doesn’t want me admitted because of my immune system so he’s given me tools and explained all the precautions so that I can be at home.
Instead of scaring me or belittling my intelligence or undermining my own concerns, he makes me proud to be intelligent and aware and doesn’t answer my questions with phrases like, “you just let me worry about that,” or, “we don’t need to get into definitions or science.” He WANTS me to be at the same level as him because if it comes down to a person’s life, why wouldn’t they? His job is to care for me and to do everything in his power to help me to recover. He doesn’t take me for granted as just another patient. He knows my body after all these years but he also knows I know my body better than anyone does and he respects that.
He asks me more questions than I ask him, and we work TOGETHER – it’s not like other doctors people tell me about that they’ve dealt with. It’s not like, “I’m the doctor, do what I say.” It’s more like, “you’re my patient, let’s discuss options and treatments and risks and concerns and fears and how we can combat possible and current difficulties.” He makes want to fight, he makes me better. Even just his voice on the Emergency On Call line this morning took me from panic to immediate calm. “Be at the office at 8, we’re going to handle this in the office before we do in the hospital.” He fights for me. Because of that, I feel strong enough to fight for myself.
And, we laugh. A LOT. Darkly. 😬🤣 He understands me (and enjoys my personality) that way.
THAT is the kind of relationship you pray for with your doctor. He loves his patients deeply – because healing and helping them is his passion, and purpose – not just his “job.” I may be very sick and dealing with some possible very high risks, but I am also so very blessed. 😭🙏🙏🙏